Mood: don't ask
Now Playing: Day 663-The Final Road To Survival
My Tuesday didn't end until this Wednesday morning around 9:30am. It was like a nightmare that I hope to never relive again. I don't feel the need to get into everything but let's just say between the darn Drano getting stuck in my upper intestines, becoming dehydrated, a ER visit to get some much needed fluids, waking up around 3pm feeling super dizzy then having a very low blood sugar reading this evening making my doctors scramble to get it back up makes for one hellish 48 hours.
If that wasn't enough I still had to fit in the rest of my Hell-In-A-Jug treatment today. I must start forcing more sugar and more Gatorade on a daily basis so I don't keep getting into trouble. I had a smashing headache caused by some outrageous stress that I quickly put a lid on followed by more Drano so I didn't go from tremors into seizures. Luckily I was able to sleep in between all the bathroom breaks catching up on a few hours here and there. I should sleep extremely well this evening due to sheer exhaustion. I have been keeping close tabs with two of my specialists who are trying to get my body to bounce back a bit with my blood pressure, blood sugar, pounding headache, head pressure, nerve pain and learning to tune out unnecessary stress that's interfering in my overall care.
I have learned from having this blog that there are people who are called friends located everywhere. Thank you to those who look after me and my well being. Most I have never met but hoping to meet a few friends next month as they come in town to visit. I never expect those who don't walk in the same shoes with any disability to understand what its like to be sick so I continue learning to tune it out and looking straight ahead. I have a life and although its been altered due to being sick and a stack full-arms length of medical records and over 16 specialists with medical facts I don't feel the need to continue forcing others to understand my condition. Those who question my specialists are welcome to reading the facts and hundreds of medical reports. I worked since I was 16 years old and paid into the system in order to provide myself some sort of assistance if I became disabled. The government does not just give out disability freely and they take each individual case very seriously. My SSD approval process took over two years due to a mountain of medical records and testimonies from numerous physicians. I would had continued working and did so until it become too dangerous for myself and others. I was then advised by three specialists that I had to stop working. My SSD case was overturned a little over two years later in court due to numerous connected problems with damaged nerves from my Idiopathic Gastroparesis. Anyone who thinks not working is fun or uses the system being disabled as a free ride obviously never found out what its like being sick. Gastroparesis has no cure nor does many other medical conditions that society suffers from but the last thing we need as patients is to be chastised for something we can't control. No one, no matter what disability should ever have to suffer from discrimination. I was discriminated against today and it was the lowest thing anyone could ever do to another individual. I choose not to blog what was said due to others who might get offended or take high offense. I got enough text messages and emails through out the day and have decided to take the high road and move past the hurtful words.
I answer online emails twice a week, those who know me best can vouch for this unless I am flagged on something otherwise. I do my blog on a daily basis even days like today when I am very sick and weak so others can keep up with how I am doing and feeling so I don't have to put hours into being online when I need to take that time to rest. Its also a way for me to heal emotionally and a way to keep up with my progress. If any of my experiences help others then I see nothing but good coming from my blog.
Its been a very long day with a few important lessons that been learned. The main one is finding out that support comes in many forms and from all walks of life. Thank you for being supportive! Thank you for being honest. Thank everyone for being 'YOU.'