Now Playing: Day 642-The Final Road To Survival
I feel like a Zombie!
This BITES! Trust me. I enjoy being active as one can be living with Gastroparesis, even on days I am stuck in my house-jail after treatments but when that freedom is instantly taken away IT'S HORRIBLE!
I can't wait for January to be over with! 2012 seems like its been here forever and we are just starting the new year. Maybe its this jinxed city?..All I can say is this has already gotten really, really old and quick!
So much for a good nights sleep. I was awake every hour on the hour. I can't explain to you how my head felt but its a cross between feeling sandpaper, hot coals, tingling, dull and sharp pain. It starts on the right side of my face and goes around to my ear drum and back of my head. My doctors as well Urgent Care and the hospital have followed up and monitoring things very closely but today I just haven't felt too good. I actually feel worse than I did the first day. They said things will get worse before they get better but they didn't mention I won't be getting any sleep either. GRRRR....I am so irritable with the head pressure and all sorts of strange feelings that I can't stand being around myself right now. Hahahaha! I have warned those who are bold enough to come around me that right now its best I am left alone. Sound hurts and light hurts. Luckily this afternoon we finally figured out how to set the closed caption on the new television and dim the lighting down. W A Y down...
My friend said I look like a Zombie wrapped in head dressing and ice packs. There aren't enough ice packs to keep on this head. I have tried the anti inflammatory medication but haven't gotten any relief. Remember I have Gastroparesis and a paralyzed digestive system so any medication in the form of tablets or capsules doesn't work. At least I tried but for now the only bit of relief I seem to get is using over the counter Activon for the back of my neck and shoulders then ice packs for the front and back of my head. I still have bone shifted on the right side of my nose but find a bit of relief using breath right strips to help at night since its hard to breathe. Am I complaining? Oh yes! Like I said, I am beyond irritable. This reminds me of when I had viral Meningitis however my brain wasn't bruised and at least I could sleep. The head sensations are quite different too but I was also the same as now, stuck at home channel surfing for a very long time. Its a catch 22 because with my Idiopathic Gastroparesis gravity is my best friend that works for me, not against me. Laying around too much can eventually backfire so I do have to be careful.
Around 9pm this evening the head pressure took on a completely different level. I couldn't even lay my head on propped up pillows. The ice packs also weren't giving me any relief. I couldn't hear out of my right ear and the pressure was quickly shifting to both sides of my head. I had that gut feeling that something wasn't quite right and it wasn't going to get any better so I made a very, very critical decision to head back up to the hospital. It was the fastest drive of my life because I was in some serious pain! I also made a very quick and dumb decision driving up by myself. YES! THAT WAS DUMB! I could had not only killed others on the road but also myself. I just had a concussion but I feared the ride in an ambulance would be far worse so in ten minutes flat I arrived at the hospital and was taken back to trauma room #1. A medical staff of five quickly awaited me once I made it through the door. They take head traumas very seriously and so do my doctors who are concerned since I already have a seizure disorder. The emergency room staff was very fast and extremely knowledgeable. What they realized very quickly was the blunt force between hitting the wood table and the force of a 50 pound dogs skull caused the entire right side of my brain to bruise so the medication I was taking wasn't enough. I was still getting lots of new inflammation. The way I also hit a moving and standing object affected my ear drum so I am now getting inflammation in between my ears. This caused me to temporarily lose my hearing in my right ear but in time once my brain heals it will come back. Funny enough I lost my hearing in the same ear for months when I was recovering from Meningitis.
They gave me a shot filled with what they call, "The good stuff!" It was a three in one for the head pressure and crazy sensations I was feeling, severe inflammation and hopefully to get some much needed sleep. After the doctors thoroughly examined me they came back in to go over what the heck was making me feel rapidly worse this evening. They call it "Post Concussion Syndrome." I thought I heard it all but I guess you never really hear it all. Seems since I had two hits at once my brain couldn't handle that kind of impact so my brain is bruised and trying to start the recovery process. He explained it will take months and sometimes can even take up to a year before I make a complete recovery. I tend to think maybe a few months but once I learned since I already suffer neurological problems such as the seizures and vagus nerve issues it will most likely take a bit longer. GO FIGURE! Not the news I wanted to hear and I am so sick of being sick. I was extremely disappointed. The doctor said, "Instead of taking two steps forward you just took two steps back." With your past history of Meningitis and having a current seizure disorder it will take you longer than the average person to fully recover from the concussion." He did understand the reason I drove myself to the hospital was because of the overwhelming head pressure. At the same time he didn't agree with me making such a quick decision and instead I should had called for an ambulance or someone to drive me to the hospital.
Live and learn.
So after getting some medication and the doctor writing up a new prescription which hopefully will allow for some sleep and less crazy head sensations they went over Post Concussion Syndrome and what to expect as my brain recovers from the trauma. If I didn't like being stuck on my couchbed before I sure won't be liking it now! They do understand my Gastroparesis and did agree its important to still get up every so often and move around. They also understand the importance of doing my treatments. Honestly I was only able to do half yesterday because I just wasn't feeling well but half to them was better than nothing at all. My own doctors also agree but I do need to finish the rest of the treatment within this weekend. I just have to do the best I can for the time being.
At least the hospital doctors understood the irritability and said it was perfectly normal because its like having a huge bruise. Instead of having it on the outside its on the inside. They said, "Your brain isn't made to be hit with that type of force against your skull." I was warned I might experience other neurological changes and that its to be expected while my brain is in the healing process. I just need to try and not let it freak me out. Same with wanting to cry out of nowhere over nothing. Its also normal.
I left with me and my car being drove back to the house. I was beat! I just wanted to get back home with the fur kids and hope to goodness the medication will allow my brain for some sleep. Its nice to be educated on what I am going through as well the long term process of healing. Any errands that need to be done outside the house will have to be done now by others because the risk of me right now blacking out or falling are far too great. I sure don't need to play the medical lottery this time and get two concussions in a row.
Watch out couchbed! Here I come!..
Posted by GastroparesisAwarenessCampaignOrg.
at 11:59 PM EST
Updated: January 20, 2012 12:49 AM EST