Mood:
Now Playing: Day 637-The Final Road To Survival
What a week! What a day, but another productive one at that! Unfortunately all good things must come to an end as I am closing in on another Drano treatment weekend. UGGG!
It was a great day as I once again was able to put out another fire. Nothing more self gratifying than relieving stress. GP and stress just doesn't mix. It starts causing my insides severe inflammation. Last thing we need as Gastroparesis patients. I am now taking the time needed to live a safer and happier life for me and my beloved fur kids.
I got quite a few offline emails regarding the situation a week ago with the attempted assault. There were quite a few outraged individuals who aren't just GP patients but others who suffer from various conditions as well those in the legal and medical field. Like myself, they take it very seriously knowing someone would attempt to be violent towards anyone who is sick. If I lost my backbone over the years I quickly found it and thank you to those who support the act of self defense in order to keep safe. Its not like me to take such extremes but I have yet to deal with someone so intoxicated as to come after me and try to force themselves into my home in a rage. I have quickly learned from that one night of experience that you can't wait until its too late. I am lucky she was unable to get into my home. I can only imagine what 'if' she did. For now I am doing just fine and I am confident enough to learn from the experience in what to and not to do. Thank you everyone for your amazing support and being my rock!
This evening I put together a letter on behalf of a family who has a daughter suffering from Gastroparesis. Her name is Brittney and she is 12 years old. Her family asked for my help in contacting one of the Gastroparesis Awareness Campaign spokespeople. I take what I do helping others who suffer from Gastroparesis very, very seriously. It has been my passion for many years. Lately that passion has sadly had to take a back seat due to personal issues that have created a lot of stress for myself. After sitting down tonight in the GP room filled with many reminders of why maybe I have been blessed to live almost nine years with a terminal condition called Gastroparesis I vowed to refocus my attention to the cause. It helps me to help others and I enjoy all the wonderful emails and letters from fellow GP patients as well their family, friends and loved ones. I now realize my true calling and it was nice to start my focus again this evening on bringing a smile to a young patient by the name of Brittney. I am going to share some photos and story of an amazing and quite talented young girl who enjoys baking and visiting the local pet stores. I see so much of myself in Brittney's story and the love for the furry ones. It breaks my heart to read her suffering by the hands of Gastroparesis. I can only pray my mission allows for one day a cure for those like Brittney as well many other GP patients. Amen.
My daughter Brittney is 12 years old and suffers from Gastroparesis. Brittney has been through a great deal in the past 15 months. She has suffered greatly with this illness. At first, we thought she was making it up or was just a worrier suffering from anxiety. But after losing 17lbs and not being able to eat anything at all, we started to get very concerned. She was looking very ill and seemed to be getting depressed. Then when she completely stopped gaining weight, she also stopped growing. She was suffering daily with nausea, abdominal pain, vomiting and insomnia. She was eating very few foods because there are so many foods that upset her system.

Nothing quite like the magical feeling waking up to see SNOW! B E A U T I F U L SNOW! GLORIOUS SNOW! Wonderful S N O W! I just knew it was going to be an amazing day!
It's called the act of "Self Defense."
I like to call my little friends M O P. I won't tell you what the initials stand for, I rather you guess but certain you can figure it out. When you are sick and in no position to be lunged at nor threatened with violence you have to get some type of support and back up. Have a game plan. Sure wish I had both prior to last weekends ridiculous act of someone being way out of control and NUTS! Being told by the law and the court system that regardless the scenario and you are sick as well injured you need to do what you need to do to protect yourself. Period. I couldn't agree with them more and honestly I have had just about enough, no wait! I HAVE HAD ENOUGH of walking on egg shells. No one should have to live a life of fear due to some nut job extended family member nor an addict who mind you will never be clean or sober. They just lead everyone to believe they are for the sake of once again manipulating. Those who fall for the stories are just as if not more foolish looking than the addict.
Now I have my own personal stash of M O P S because one can never be too prepared to protect themselves. Amen. Miss pink M O P stays by my side indoors while her cousin blue M O P stays in another location and their cousin dark blue M O P in a special secret hiding spot. A dear friend of mine was very, very proud of me today for taking action and finally saying NO to being a door mat for violent and aggressive behavior. They have recently taught their own son about sticking up for themselves after being picked on by a bully at school. He said, "You can just never be too certain with people in this world. There are a lot of nuts out there and you always have the right to protect yourself when you are being threatened. This also goes for children because as parents we can't always be there for them." As a very concerned Father he has no problems confronting the school nor the bully's parents but at the same time let's just say his son finally stuck up for himself and justice was served!
So for now I told the judge's office I will hold onto the paperwork but at the same time I will do what needs to be done in the name of self defense. They agreed as well the local and county Sheriff's department. 'If' and that's a huge 'if' this happens again the individual or individuals will be arrested on the spot. It will be the last and final incident report that will be taken. Guess we all run out of the 'Get Out Of Jail Free' passes sooner or later. Back fractures or not I refuse to ever again live in fear. 

There wasn't much sleep for this gal last night seeing poor Oreo still isn't feel well with seizures. He had one at 10:30am that woke me up then he was disoriented stumbling to stand up so once he come to I had him sleep next to me on the couch bed. This way I could keep a close eye on him. The seizures are very scary for him as well what follows which is extreme disorientation. His blood work is still out pending and until that comes back its touch and go. Jingles isn't helping matters but he can't help it since hes still a puppy. Littleblue is still nursing her hedgehogs playing Mom to the gang. So much for a two week ordeal. We are now going on three weeks.
The veterinarian was very concerned with the other fur kids at home seeing they can rebound the same infection and virus then pass it around again. YIKES! With Oreo also being 13 years old the stress of the puppy isn't helping his seizures because over the past three days they have gotten worse. Oreo is having different type of seizures so it makes it twice as hard for the veterinarians to get things under control. "IF they can get them under control." When the blood work comes back then they will have a better understanding of Oreo's medical condition.
This all makes me wonder the other night when that nut was over the house outside in a psychotic rage while Oreo was also outside if that made his medical situation worse...Seems to me if stress makes my GP worse and others who have chronic or terminal medical conditions it can certainly do the same to fur kids. It really makes me infuriated! My back is still not 100% and I had to cancel my GI appointment for Thursday since things had to be all rearranged this week and I still have to fit in the second half of my treatment. GEES! My Gastroenterologist is very understanding and worked me into next week, same day and same time. Tomorrow I have a court appointment to put a quick stop to that nut trying to assault me for no reason then I will be taking a further step in another direction right after that so I won't be tolerating something like that from ever happening again.


My friend apologized to me today in regards to not sticking up for me while having someone attempt to assault me. Honestly he said, "I don't know what I was thinking but I sure the heck wasn't thinking." It got to him all night and around 5am he confronted my ex about the entire incident that happened all because his puppy 'accidentally' got out of the house when he was walking Littleblue. Remember anyone who comes off drugs is bound to snap for no reason same goes for the sibling and whatever they were taking or under the influence of. Detoxing should be done under a controlled environment and never on your own cold turkey. Its a step down process. Not all at once. Lord only knows but it was CRAZY! My friend asked for my ex to apologize for coming after me and screaming when it wasn't my fault that his puppy 'accidentally' got out but I would never and don't hold my breath.
On top of the chain of events this is Drano treatment day and I still have a swollen back. Its important for me to walk around still due to my Idiopathic Gastroparesis but it doesn't come without the heavy price of constant pain. I have been through worse and I will just have to continue sucking up and dealing with it. I didn't sleep hardly at all last night into the morning and early afternoon. I got a few hours here and there in between the constant text messages and calls from very concerned out of state friends. At least they did talk me into some rational sense and helped me decide the next of many moves which will allow some peace back into my life. Its true! Unless you have lived it yourself or walked in someones shoes you will never know first hand what its like. They all know because they either have been through the same things or live it now. Consider it being a back bone for each other. 
So much for this being the start of a stress-free weekend. I should had just caned or wheel-chaired my way out of the house tonight but instead some how I made my back much worse last night. It could had been from moving a box or just bending the wrong way. Regardless I figured late last night it would just 'go away' if I just took it easy and used some ice. Instead I didn't sleep well and couldn't get comfortable. The pressure pain was horrible trying to sit up and when I went to move it only got worse. When I looked in the mirror my entire lower back was swollen. I think I bit my own tongue by not listening to my specialists and taking it easy. I had planned to go out this evening but instead got stuck once again inside my house-jail. At least the animal gang are enjoying having me home. So much for getting out once a week and with treatment tomorrow it doesn't look like I will be getting out to escape anytime soon. If I do it will only be to my local police department or county courthouse.
Let's be honest by saying anyone who has a drug or alcohol addiction problem you won't be winning any arguments nor reasoning. While I am hearing it from him I am hearing it from his sibling and things were getting NUTS! From minding my own business to once again being a punching bag I had to literally try to shut and lock the door on his sibling who was trying to grab and punch me all at the same time. YES! All this unnecessary stress and madness was going on while my friend of all people was just standing there. Call me crazy but I am not sure what he was thinking! He should had protected me by escorted the sibling off the property so they didn't cause me any further stress nor physical harm but...he didn't. My ex didn't help matters either by continuing to say they can come over and visit when they want. This was also going on while the sibling was still calling me every name under the sun while still reaching for the door and me. I am not sure what they were loaded or tanked on but I was just waiting for them to put their fists through the glass storm door. I wish they would had then maybe when they woke up the next day they would had realized how crazy they looked! I don't even talk to my ex's siblings nor family. I haven't in years so I am not sure why this sibling felt it was 'OK' to come after me like that. Its called aggravated menacing. 
The new water is called MetroElectro and after I checked the ingredients it has the same as SmartWater but the difference is the added nutrients such as zinc. I decided to buy four large bottles and give it a try. So far so good! I don't taste much of a difference with MetroElectro water compared with SmartWater but any added benefits I can get all the better! I plan on sticking with this water over the next four weeks pending if I do ok and it doesn't make me nauseated or cause any further GI problems. With Gastroparesis if something doesn't agree your body it will definitely let you know!
I had an appointment with Miss Clairol this afternoon. Although my hair is literally coming out in chunks I still have to deal with darn gray hairs! This of course will be temporary. Something I won't miss when I lose the rest of my hair is coloring it. Same goes with trying a zillion hair care products that all say one thing but I don't see a darn thing but a waste of money. I have used all the Biotin products out there on the market but nada-zip! Same goes with nutritional supplements. They never worked for me either. If all this waste of money really worked wouldn't I have a full head of hair again? EXACTLY! Instead I should had spent all that money on wigs that guarantee me hair on my head. Hahahahaha!
Jingles puppy has been off his antibiotics the past few days but this evening I could hear chest congestion starting up again. Looks like he will be going back to the vet this weekend for a second round of medication. Poor little guy! No wonder he wasn't been as energetic today. He even took a seat next to me before I laid down with the heating pad. I love puppies! They are just the cutest! Jingles is starting to develop a personality too and a darn fiesty one! Hahahaha! I tend to think he will be a very BIG BOY in a year. His feet are huge on top of having some very long legs. Littleblue and Oreo at least got to take a few walks to the park across the street today. This weather makes no sense! The temperature was around 65 degrees today and my spring flowers are starting to come up again! YIKES! If we don't start having more winter like weather I can only imagine how horrific allergies will be this coming spring and summer. Forget me stepping out of the house! I'm praying for SNOW! SNOW! and more SNOW!
My friend got his 'school photos' back. Hahahaha! OK. More like work photos. He tried to hide them from me seeing he doesn't like any of them so I had to choose a few for him. Since I already had a photo editor program same that magazines use I can tweak with backgrounds, etc. I decided to send him some chuckles while he was at work this evening and boy! were the photos FUNNY! I will have to post a few this weekend. We both laughed, laughed and laughed! So did his coworkers! Out of ten poses I liked two the best although he still insists he doesn't like either. That's men for ya! Hahaha!
I made sure to set my cell phone alarm last night for my doctor-therapist appointment today. Of course I was awake way before my alarm went off since Littleblue is still in her Mommy mode collecting stuffed animal hedgehog puppies all hours of the day and night. I expect this to only last maybe one more week. Its cute but at the same time I think I am just as exhausted as she is! Hahahaha! Oreo is doing a bit better although hes still very slow when moving around. I keep a close eye on him and Littleblue as well Jingles puppy. Oreo and Littleblue have another week of antibiotics then need to get rechecked. Jingles is finally finished with all his medication so he will be rechecked this week since he was the one who brought all the nasty germs and viruses home. He is a handful! It seems so long ago when Littleblue was 'little.' Jingles will give you a run for your money and then some! Hes hilarious when he goes into the run mode going round and round the couch, at least three to four laps then DONE! Oreo gets exhausted just from watching him! Hahahaha!
I am running out of hair!" I don't see any new hair regrowth either. My doctors have run every test under the sun but no luck! It just comes back to the same thing-Idiopathic Gastroparesis complications-poor absorption. The last few weeks I have come to the understanding that I just need to embrace wigs. Have fun with them! Not consider them as a horrible reminder of my condition. Its not like back in the day when wigs were rare and not many people wore them. Now you will find lots of celebrities wearing a variety of wigs. My first time out in public with one on was New Years eve. I sported a long blond two tone look. I took some of my Christmas money and bought another one today which is almost the same color of my natural hair now but with dark red high lights and side bangs. Next venture out I plan on wearing my latest wig. It might take a bit but no need to cry over something I can't change and hair I won't be getting back.
I see my amazing therapist tomorrow armed with a team of support also accompanied by support. No. This fire won't be put out anytime soon. I go to bed with one eye open and wake up the same way. I am VERY alert to my surroundings and rightfully so. Even with all this crap going on I still have to do my treatments-no pun intended and just finished one up last night. Life doesn't stop for no one and neither does the ole Drano aka Hell-In-A-Jug either. Maybe now that I have learned to respect myself again others will learn to respect me back and not use me as a pushover or rug to walk on. If you want to push just expect to be pushed back. I take my health very seriously and won't be allowing anyone to take precious time off my hands anymore. Amen.