Mood:
Now Playing: Day 629-The Final Road To Survival
So far the water has been calm today! Between the unnecessary stress on top of rebounding from the ole Drano I am doing my best to get as much rest as possible. I have gotten nothing but broken sleep the past few days but only as expected.
I made sure to set my cell phone alarm last night for my doctor-therapist appointment today. Of course I was awake way before my alarm went off since Littleblue is still in her Mommy mode collecting stuffed animal hedgehog puppies all hours of the day and night. I expect this to only last maybe one more week. Its cute but at the same time I think I am just as exhausted as she is! Hahahaha! Oreo is doing a bit better although hes still very slow when moving around. I keep a close eye on him and Littleblue as well Jingles puppy. Oreo and Littleblue have another week of antibiotics then need to get rechecked. Jingles is finally finished with all his medication so he will be rechecked this week since he was the one who brought all the nasty germs and viruses home. He is a handful! It seems so long ago when Littleblue was 'little.' Jingles will give you a run for your money and then some! Hes hilarious when he goes into the run mode going round and round the couch, at least three to four laps then DONE! Oreo gets exhausted just from watching him! Hahahaha!
I had a team of support at my doctors appointment this afternoon. Honestly there was a lot to talk about since there is so much going on. Not just information from my therapist but as well help coming from a local Chief of police and a Woman helping Woman organization making sure I arm myself with information taking all the proper actions and moves I can in order to keep the peace in my life. Its been amazing all the support and I once again feel like the strong, confident take no BS gal I used to be before getting sick with Idiopathic Gastroparesis. Change will take time but I refuse to turn back! I'm grateful as well getting insight from someone who also has a family member who is an addict. This week has started a chain reaction setting boundaries with others. I also had to cut ties. Its not easy but in order for others to respect me I have to first respect myself. I am not dead yet so I refuse to be treated as such. I didn't ask to be sick. Especially with such a rare and unknown GI condition like Gastroparesis. I can't help nor change that some might see me as already dead or refuse to accept the new me. My condition won't be going anyway anytime soon. Take it or leave it. More like take me or leave me. I am just tired of the crap and rude behavior from others.
Sometimes you just have to set boundaries and demand respect. If it doesn't work the first time then like a broken record those boundaries will be repeated over and over again. Right now I don't trust many people around this area. I can count on one hand how many I do trust. Pretty sad isn't it? Its called being burned a bit too many times.
While facing change for the BETTER I am also juggling a few changes with my Gastroparesis. Like hair loss caused by mal-absorption syndrome. (Mal-absorption syndrome is defined as the body’s inability to absorb the vitamins, minerals, and other nutrients it needs from food. Nutritional deficiencies may be experienced by an individual with malabsorption syndrome, even if the diet is healthy or nutritional supplements are taken. The disorder stems from impaired digestion, or from the inability to absorb nutrients into the bloodstream from the small intestine) In other words, "
I am running out of hair!" I don't see any new hair regrowth either. My doctors have run every test under the sun but no luck! It just comes back to the same thing-Idiopathic Gastroparesis complications-poor absorption. The last few weeks I have come to the understanding that I just need to embrace wigs. Have fun with them! Not consider them as a horrible reminder of my condition. Its not like back in the day when wigs were rare and not many people wore them. Now you will find lots of celebrities wearing a variety of wigs. My first time out in public with one on was New Years eve. I sported a long blond two tone look. I took some of my Christmas money and bought another one today which is almost the same color of my natural hair now but with dark red high lights and side bangs. Next venture out I plan on wearing my latest wig. It might take a bit but no need to cry over something I can't change and hair I won't be getting back.
One thing I got scolded on today was not using my cane as instructed by my specialists. Yes, I don't feel the pain of bone on bone with my lower lumbar but its important for me to use the cane to support my spine that has shifted on top of not having any discs left and fractures. I told my therapist today in front of everyone that I admit to letting my ego get in the way. It bothers me the looks I get out in public when all I really want when I do get out of the house is to be able to fit in with the rest of society. I don't want to wear the "LOOK AT ME! I AM SICK BADGE." My therapist also got on me about not using the wheelchair and giving my back a break as instructed. He said, "Think of it as a leg or sports related injury." I guess I could try that but most important I BETTER start listening to my doctors instructions. I don't want to be paralyzed from the waist down sooner than expected but at the same time I need to remember my spine is shifted and damaged. I feel like I have so much on my plate already that I don't know where to begin. I haven't even set up the hospital test yet to have the cyst rechecked in my chest. GEES!
One thing at a time...
I am doing good keeping up with the Drano aka Hell-In-A-Jug treatments so maybe per every ones suggestion I take my wall calender in the kitchen and put it to good use! This way I am not feeling overwhelmed nor forgetting important reminders. The next appointment is with my GI doctor regarding medication, intestinal ulcers (which in my opinion are mainly being caused by the darn Hell-In-A-Jug and stress), Drano treatments, home care and support. At least I am starting to take the necessary steps to finally put a LID on the stress part!
Two days of Drano freedom left so my friend suggested once a week if I am feeling well enough we get out to escape a bit. I couldn't agree with them more! CHEERS to better days ahead in 2012!!![]()

I see my amazing therapist tomorrow armed with a team of support also accompanied by support. No. This fire won't be put out anytime soon. I go to bed with one eye open and wake up the same way. I am VERY alert to my surroundings and rightfully so. Even with all this crap going on I still have to do my treatments-no pun intended and just finished one up last night. Life doesn't stop for no one and neither does the ole Drano aka Hell-In-A-Jug either. Maybe now that I have learned to respect myself again others will learn to respect me back and not use me as a pushover or rug to walk on. If you want to push just expect to be pushed back. I take my health very seriously and won't be allowing anyone to take precious time off my hands anymore. Amen.
OH HECK NO! I REFUSE to start this new year off on the wrong foot. I am lacing up my boxing gloves ready to fight off any evil that walks into my life or is already in it. This is the year for change. I am not asking. I am DEMANDING it! 
The fur kids are still on antibiotics and although not 100% better they are at least eating a bit of canned food. I have to fill a bowl up with milk or water and bring it to them hoping they will at least drink a bit. Oreo still isn't drinking that much which has me a bit worried. If it continues by tomorrow evening I will have to take him back to the vet Wednesday. If anything at least the can food has water in it to help keep them hydrated. Jingles puppy is slowly getting back to himself. He is full of tons of energy running back and forth room to room. He still likes to eat laying down which I assume might just be called 'lazy' instead of being sick. Hahaha! 
I have never played the 'SICK CARD' and I am tired of hearing my illness as an excuse for someone who has addiction problems. I am tired of hearing I, they, we, she, he can't help them when there are plenty of options out there to choose from. Its sad when everyone stands back and watches someone slowly decline and refuse to help the person. I did all I can at the same time being called every name in the book and put through more stress than one should ever have to go through in a lifetime. I have to use the 'SICK CARD' with this because guess what? I am sick. I have Gastroparesis but also dealing with inappropriate and unacceptable behavior.
We got tickets last month for a Michael Jackson tribute show at a casino in Indiana. Its only about a twenty minute drive so it wasn't too far but WOW was it crowded!! Once we got there I was already starting to get a bit tired. Its been a long past few days and although it always feels great getting out of the house and blending in with society it sadly doesn't take too long before the ole GP drains my energy. We did stay for a little over two hours. At least long enough to ring in the New Year. Funny thing was when I asked my friend what time it was seeing I had to make a bathroom trip he said I had ten minutes before it turned midnight. His cell phone clock must has been a bit off seeing once I went into the bathroom and sat down I heard loud music and horns, etc. I quickly went to wash my hands and overheard a few other people said, "Wow! we only have fifteen seconds left before the New Year!" Let's just say it was the fastest sprint out of the bathroom I ever did! LOOK OUT NIKE! Hahahaha! 

Once we got to the vet we didn't have to wait too long and they re-examined Jingles who is still battling kennel cough and a virus. He is slowly getting better but its important to bathe him once they are coming down off their virus. It helps to rid any bacteria on their skin too! Let's just say I am BEAT and now we must go home and bathe him on top of finishing up loads of wash. No pun intended! GEES! Jingles was a little beastly handful on the way to the vet but after getting his second round of puppy shots he was out like a light on the way home laid back down for a nap once we got through the front door. 
Once we arrived at the clinic they let us in and took Oreo back right away. The veterinarian came back in to explain why Oreo is so sick and declined so quickly. With him being 13 years old he can't fight off infections and viruses like younger fur kids. Its very similar to my fragile immune system and having to be super cautious around anyone who is sick. I catch things super fast and so can Oreo. He was running a 102.5 fever so definitely up from just earlier this afternoon. They had to give us more antibiotics then explained with the tremors, seizures and poor Oreo being so sick its touch and go. My nerves as well my friends were shot! The only good thing is the kitty gang can't get canine viruses so they are in the clear but Littleblue can catch the same viruses since they are airborne so we must watch her very closely. For now they want us to wait 48 hours to see if Oreo's body can bounce back from the virus since it is just now in the active stage. As far as seizures they can't do much because they are very common in older pets. 
Yes! Everyone is invited and all you need to do is bring your own favorite chaser and I will provide the rest! You can drink as much as you want! Need to drop a few pants or dress sizes before the holiday weekend? No problem! I have enough jugs for everyone! Hahahahaha!
I am hoping to have a low key day tomorrow and just catch up on my Jersey Shore DVDs then later on watch my friend TRY to beat my Asteroids record on the old school Atari game. Hahahaha! This evening I turned over the game three times in a row with a 100,000 score!
Am I good or what?! I warned him that back in the day Asteroids was MY GAME!
This evening I got the ole Hell-In-A-Jug together and my chaser glass. I had a few takers over at the house however they passed on any Dranotini's. Maybe next time although I did let them know I had plenty to share! Even some to go! Within three hours I dropped a few pants sizes and brain cells to boot Hahahaha! Just part of the ole Drano side affects. My goal is hoping by Saturday I will be bounced back enough to go out for the New Years Eve festivities if even for a few hours. Until then I just have to play things by ear in my typical GP life. Sunday I have a few more glasses of the nasty stuff to toss back. I split this treatment in half because I don't want my angry insides to feel more like fire than they already have been.
I haven't had too much luck yet taking medication to help cool the stomach fire off so my GI doctor called in a new medicine today hoping maybe to hit a few things at once. Donnatal. The only downside with this medication are the side effects such as knocking you out like a light and slowing things down a bit TOO MUCH. Like I need more slow organs or how about a dependency to barbiturates? UMMMM...NOT! Why in the world with all the billions upon billions of dollars pharma companies can't create medication without tons of side affects? You try to fix one problem but then end up creating ten more. It makes me a bit hesitant to take any new drug but I do need to calm my angry insides down including the waves of nausea and vomiting. I have tried this same medication years ago to no avail and it didn't resolve my problems either. If we are dealing with intestinal ulcers its going to take more than just this medication to fix the problem. I also am on a clear bland diet. 
With it only being a few days away until my next Hell-In-A-Jug treatment I am keeping close tabs on all the new medication as well existing ones. Everyone has been asking what plans I have for the upcoming New Years Eve. My response is same as any other day, "I have to play things by ear. It all depends on how I am feeling and if my Idiopathic Gastroparesis will let me out of the house to play." Hahahahaha! Well at least I was lucky enough to get out of the house for a bit this afternoon. Two days in a row being house-jailed is enough to drive anyone nuts but at least my fur kids keep me busy. They are the best!