Mood:  d'oh

Hey Santa! Send us some snow!

I was beat last night and with all this rain I made it to sleep a bit earlier too! So maybe not by 11pm, hahaha! but instead 3am. Come on...my usual time is between 5-6am. I had a follow up appointment with my specialist today so I made sure to set my cell phone alarm so I didn't sleep the day away. My friend is off work the next few days and was nice enough to agree to go with me. He also had a few errands to run after my appointment.

Its typically the same ole song and GP dance. No matter what specialist I am always promised something 'new' to add on my already full plate. 99.9% of the time I am right on target with the news. It was no different this time around either. With over eight years of battling the great GP fight I feel like maybe I missed my calling years ago working in the medical field. I never thought I would be so intrigued in learning the mysteries of the human body. The constant research I do aids my doctors with my rare condition. It also never seizes to amaze them. Sometimes they just sit back and tell me, "You are smart. I don't need to explain things. You already figured it out." Sometimes its just nice to reconfirm what I already thought was going on.

Like today.

With a paralyzed GI tract theres bound to be numerous connected problems. I have yet to run into a fellow GP patient who only has stomach dsymotility. Some have at least two other problems associated with their Gastroparesis. However most have a list. Honestly there always seems to be something new going on with my Idiopathic Gastroparesis. There isn't anything anymore that can shock me. Once I got back into a room my doctor called me into their office. We went over everything including the problems with my kidneys, sugar and lack of absorption. Its important for me to understand which monster I am facing. Today I found out what I already knew since my gut never fails me. "Hypoglycemia, malabsorption and rapid flushing with my kidneys." This explains the constant need for sugar and the flairups that leave me in the bathroom all day. My hair has already taken a cruel beating over the past three years. We can no longer just blame the ole Hell-In-A-Jug seeing I personally decided to give myself a year break before only finding out I was one step away from double bowel obstruction. It was then around five months ago I was placed back on weekly treatments and now twice a week. Even during that year off Drano I was still experiencing hair loss.

Here's the final diagnosis...

We all have yeast in our bodies. Its normal. Whats NOT normal is when the body builds colonies of yeast due to damage intestines and weakened immune systems. Put me in that catagory. I don't absorb sugar properly. If any...barely. This has my internal organs even more confused and altered. I also have rapid flushing with my kidneys. Sugar, hair loss, malabsorption and kidney problems GP related? Yes. Hair loss isn't all from the Drano treatments it is mostly caused by the lack of absorbing important nutrients in solid foods as well liquids. Yes, its inevitable I am close to losing the rest of my hair but this gal has know for quite awhile. Its just hair and my doctors have more important things to worry about like making intestines work that are paralyzed and keeping me from becoming toxic. I still needed confirmation regarding the great hair loss mystery and today I got it! When it comes the time and that will be soon "I" will be the one holding the sheers not a beautician at the local salon.

The game plan for now is a weekly treatment trying to help balance over active yeast in my body as well doubling up on medication to help boost my compromised immune system. This is the third attempt and although its a long shot at least it gives me a bit of hope. If it works GREAT! if not that's ok and I will just continue doing the best I can with the plate I have before me. Me and my doctor chuckled about my hair loss seeing I told them, "I was born with wayyyyyyy too much hair to start with so if LadyGaga can wear wigs then I can wear wigs." My doctor is thankful for my humor and kindred spirit continuing to fight, fight, fight! I am just thankful for a great team of doctors. I couldn't ask for more! AMEN.

I was adviced by my doctor today that I already had genetic testing for cancer genes done 14 years ago. Since my Grandmother had bowel cancer and my Aunt ovarian it was important to make sure I wasn't at great risk for either. The good news is I showed absolutely no genetic cancer genes only a Lupus gene. I don't have active Lupus but for now only carry the gene. WOW, I told everyone! I guess I went from one evil to another. Now if only I can magically delete the GP gene, hahahaha! Well only one great mystery solving at a time. GEES! I am not Einstein, hahahaha!

Posted by GastroparesisAwarenessCampaignOrg. at 11:59 AM EST

Updated: December 16, 2011 2:55 AM EST

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Mood:  bright

Rain, rain and more rain! Are we ever going to get a break or how about some snow? At least we didn't get the monsoon rain they were expecting but no worries seeing that is lined up for tomorrow. GEES! We were going to try and go down to the local Zoo to see their festival in lights show but that isn't going to be happening. I wanted to go the past eight years but either its been too cold or I am sick. So far this weekend isn't looking any better so maybe next week?...

My friend has rotating days off. Today was the first of two. I didn't get up until 2:30pm and tried to be as quiet as possible so he could sleep in. Once I fed the fur kids and took a shower it was already 4pm. Wow! When you can't sleep and go to bed late the days just fly by! I might just hibernate the entire winter season although once I can get my body moving and motivated I do A-OK. Only a few things to do this late afternoon. One going to the post office and second the store. At least with my friend off work he can go with me. I just don't have the energy or strength anymore to do all the grocery shopping. Its nice finally having some help and not being an 'ARMY OF ONE.' AMEN! I decided to make some homemade vegetable soup so we got our list together and headed to do some shopping. I don't know my days anymore. They just seem to all run together. At least the huge pot of soup will hold over for the next three to four days. Littleblue sure knows how to beg doesn't she? Such a silly girl! She knows the sound of food and POOF! she appears!

Once we got back I made a huge pot of homemade vegetable soup. It sure smelled delicious! I also treated my friend to a hair trim. Yes! I am 'Jack Of All Trades' and cut hair too! It sure beats sitting at a hair salon during the holiday season when they are super busy! My friend says I do a heck of a lot better job than any place hes been over the years. Its the least I can do when he helps me out on a daily basis. I also do eyebrows, hahahaha!

We decided later to work out. I got on my treadmill for a bit and my friend got on the AbTwister machine and used the work out video. I used to have a dual weight station system but with GP comes change and once my spine was being affected it was time to part ways. Now I enjoy just light walking and keeping as busy as my body allows.

I see my specialist tomorrow regarding my kidneys and sugar problems then back home to Drano...What a life! What a life! As a good friend said and said it best, "Being hermits and germophobics is the life we have to life." I can't agree with them more all in the name of survival in this GP life. Amen.

Posted by GastroparesisAwarenessCampaignOrg. at 11:41 PM EST

Updated: December 15, 2011 1:15 AM EST

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Mood:  happy

It's hard to be festive when you are sick, but where there is a will there will always be a way!

No need to tell you my bedtime. It hasn't changed. I still refuse to take tons of medication only to help one thing and make other problems ten times worse. I instead allow my brain to override the nausea, vomiting and pain. This means my bedtime is anywhere between 5-6am. I get up when my body tells me it had enough rest. This is between 2-3pm. At least my doctors don't have anymore concern with not allowing my body enough downtime after each treatment.

I created a holiday list this year in hopes of crossing off one festive activity after another. Now if only the constant rain would let up! I don't mind the snow in fact you KNOW I LOVE SNOW! I just don't need to be out in cold, rainy, damp weather and risk getting sick. At least me and my friend were able to take the fur kids up to see the drive-thru light display at a local park. Its a tradition for me and now going on 14 years. This is new to my friend but he really enjoyed it! Its nice when you are not feeling well to just drive-thru the display and not worry about having to get out of the car.

The fur kids really enjoyed the lights although I tend to think they were more focused on smelling the cold, fresh air out the windows and wanting to be one with the woods, hahahaha! They were already tired prior to taking them seeing we made sure to go for a short walk first to avoid any 'accidents' in the car. They had a few new displays this year at the Holidays In Lights and added a new SantaLand where you can visit Santa and his Elves. It was a great day to go because we didn't have to wait in any long lines to view the lights and we could take our time. The fur gang were on their best behavior. Needless to say once we got back home they were all out like a light! Hahahaha!

I found a box waiting for me at the front door filled with goodies! I also got a very nice gift in the mailbox. Thank you Joe & Janet for the movies. It was very thoughtful of you! Thank you France, Roland and the KittyGang for my new manicure set and all the beautiful polish! Let's just say I got to try a few colors out this evening. Now I have "Happy Toes!" Thank you also to all my fellow GP friends as well family, friends and loved ones for the festive cards that line the doors near my couchbed. Its very nice to wake up and see all the colorful cards!

Its the little things in life that mean the most and being remembered during the holidays.

Posted by GastroparesisAwarenessCampaignOrg. at 11:42 PM EST

Updated: December 14, 2011 4:26 AM EST

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Mood:  celebratory

I have always been known to do my own research to help my specialists with my Idiopathic GP care. Recently I was told my kidneys are causing more problems as they filter and flush fluids way too fast! This started a few years ago. We all chalked it up as part of my Idiopathic Gastroparesis. I have done all the urine output tests, blood work, urine cultures, etc. NOW after doing a bit of my own research we have finally found the culprit behind this connected GP problem. There are quite a few of us GP'ers who have problems either with sugar levels too high or too low. Mine tend to run very low even after consuming chocolate or sugar which I am limited to only one brand and two types. I am constantly finding myself craving SUGAR! Not cake or baked goods but sugar. I have also connected the constant urination around the times I am craving sugar. Some say I am a sugar junkie or sugar addict and they are very close to the truth. We have recently found my low blood sugar issues and kidney problems connected to GI problems due to my Idiopathic Gastroparesis. I am unable to gain the weight due to my body is not processing the sugar correctly or breaking it down properly. I also don't spike sugar levels even if I was to consume a handful or entire bag of sugar/candy. My specialists had me using a blood sugar monitor over the past year and sure enough my readings do not elevate. In fact after all that sugar they still run low under 80 and I am back in the bathroom urinating constantly. It takes so much sugar for me to feel better and not have the shakes or dizziness. I still crave it on a daily basis.

NOW WE KNOW WHY.

Is there a cure to this madness? No. Once again doctors must treat symptoms as they arise-if they can be treated. To put it bluntly my body needs the sugar, if not I would either constantly pass out or be in worse trouble. Darn if you do and darn if you don't because my kidneys are doing overtime. Just another organ that is forever damaged and altered due to Gastroparesis.

Here is some info on sugar and connected GI problems. Any of it sound familiar to you?

SUGAR: Without the sweet treat, one may feel tired, light-headed or confused.  There may be shaking or weakness that is relieved by eating something sweet.  More extreme symptoms include shaking or tremors, severe headaches, nausea or even vomiting. 

CAUSES OF PHYSICAL ADDICTION TO SUGAR

Sugar, in the form of a substance called glucose, is the basic fuel of the body.  Other sugars such as fruit sugar (fructose), milk sugar (maltose) and others can also be broken down in the body to glucose.

Normally, our bodies do not require sweets, however, for food.  We eat starches such as rice or bread, potatoes or carrots.  We may also eat fats such as butter, eggs, and meats, and even protein foods.  All these should be decomposed or broken down if needed into glucose in the digestive system and the liver.  The name of this process is gluc.

When a person must eat simple sugars, or even honey or fruit juices on a regular basis, it implies that one cannot breakdown complex foods into sugars.

In other words, the craving arises due to the body's inability to properly digest and utilize other, more complex carbohydrate foods, or fats in amounts sufficient to fuel the body.  Therefore, one wants to eat the end product - sugar.

This is as bit like having a clogged fuel system in a car.  The normal way that gasoline reaches the engine from the fuel tank is by passing through as series of steps to "process" the gasoline.  However, if the fuel system is clogged, gasoline must be poured directly into the engine without the usual processing, bypassing the usual fuel filter and other steps, or the car will not run. 

WHY THE BODY'S FUEL SYSTEM DOES NOT WORK

As in the automobile, sugars in the body must pass through a number of steps in order to be digested, converted, moved into the cells and utilized there for energy production.  A blockage anywhere along the fuel conversion process can and does cause sweet cravings.  Before discussing the trouble spots or places where blockages occur, here are the basic steps in the body's fuel system.

1) Complex carbohydrates or starches, fats and oils and protein foods are eaten.

2) Proper digestion actually begins in the mouth, with chewing to disintegrate the food and enzymes in the saliva that begin its chemical digestion.

3) Once in the stomach, digestion continues, as does mechanical mixing of the food with hydrochloric acid and other substances such as pepsin, a stomach enzyme that helps digest protein foods.

4) As the food passes into the small intestine, it is soon mixed with bile from the liver and pancreatic juices from the pancreas.  These further digest the food.

5) Now the food is broken down into its basic components.  Carbohydrates are broken into sugars, fats and oils into fatty acids and proteins into amino acids.  These must be properly absorbed in the lower intestine, mainly, where they flow into the liver and kidneys.

6) In the liver, in particular, these may be converted into other fatty acids, cholesterol, amino acids and other necessary nutrients.  Sugars may remain in storage in the form of glycogen, or may pass out into the bloodstream.  The kidneys filter the material, making sure that harmful chemicals are properly removed.

7) Once the nutrients leave the liver and kidneys, they move to the body cells.  Here they must pass through the cell membranes and enter the cells.  This requires the vital hormone, insulin.  Any problem in the insulin mechanism impairs movement of sugars into the cells.

8) Once inside the cells, sugars, fatty acids and amino acids enter two energy cycles, called the glycolysis and the Krebs or carboxylic acid cycles.  In these, they are finally converted to the form the body actually uses for energy, mainly a substance called adenosine triphosphate or ATP.  This completes the process of sugar utilization.  As one can see, it involves quite a complex number of steps.  Now let us see what  happens in people who have a sugar addiction.

TROUBLES IN THE FUEL SYSTEM

 There are many possible trouble spots in the body's fuel system.  Among the most common are:

Posted by GastroparesisAwarenessCampaignOrg. at 11:40 PM EST

Updated: December 13, 2011 4:14 AM EST

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Mood:  celebratory

That's another 'V' for victory! YES! I am still ALIVE! I made it through another Hell-In-A-Jug aka Drano treatment! WHOAHOA! Never again though should I attempt treatment being home alone in the evenings seeing this round wasn't very nice in fact it was extremely wicked! When things hit you a wee bit too quickly it can also hit you twice as hard when it comes to side affects of the unknown. I have also come to learn peppermint tastes the same coming back up as it goes down. YUCK! So maybe peppermint isn't such a good thing to eat hours after treatment although it seemed like a great idea at the time!

I honestly didn't get up until 4pm. If anytime I was close to just throw in the ole towel with the evil GP life I came close this afternoon. It gets harder and harder each week for me to rebound. Don't ask me how I do it or have the fight to keep on keeping on but somehow I have it within and here I am! A Drano Survivor! Hahahaha! Sounds funny doesn't it? This treatment I had the typical nausea, vomiting and low blood pressure with chest tightness. A new side affect happened this morning at 9:15am when I started having panic attacks. OH NOT GOOD! Panic attacks are scary as heck and once you have one you never forget it either. Luckily my friend had their cell phone on at the armory and talked me through it. I also had Mr. Valium here at the house so within fifteen minutes my brain lost and instead of dealing with another panic attack I went right back to sleep. Can we say THANK THE GOOD LORD!?! I DID!

Although my body and brain are still tired its important not to lay around all day. Heck, I already slept until 4pm VAMPIRE TIME...BOO! My Mom was nice enough to come pick me up this evening seeing I am far from stable on my feet. I also have the side affect from the Trilyte/Golytley that makes it hard to talk. I know what I want to say but I just can't think of the words. Its a strange reaction to treatment but its sadly the norm. My brain is in a fog I like to say over the next twenty four-forty eight hours. A Drano Fog. We didn't go too far from the house just in case I got really dizzy and sick. Just long enough for me to get some exercise and walk the treatment down my GI tract. Regardless how scary it can be enduring weekly nightmare Hell-In-A-Jug treatments I don't have the sweats anymore or intestinal pressure as if my insides are going to rupture. I don't look like I'm six months pregnant anymore either. Its a rapid way to drop three pants sizes, hahahaha!

WELCOME TO MY WORLD FOLKS!

There are five of us not so lucky GP'ers. I might want to just call us the five Survivors of the never ending intestinal nightmare of weekly clean outs. I have yet to meet my GP twin who also has to drink this toxic poison on a weekly basis. I am sure he/she is out there so its only time before we meet and can exchange scary stories. My other fellow four clean out buddies drink mixtures of magnesium-citrate along with other laxative concoctions. Maybe Santa just needs to send us all chemist sets for Xmas! Some even braved having their colon removed in hopes of putting down the last glass and bottle of dynamite. Sadly once Gastroparesis invades the intestines there is no turning back. It doesn't get any better as each nerve slowly dies and paralyzes one inch at a time. If your small intestine is paralyzed and lacks motility then sooner than later the large intestine/colon will also lose function. Same goes if its the other way around but regardless some how my poor fellow GP friends are back drinking the foul stuff. Its a never ending game of magnesium-citrate and other medications all in the name of finding some sort of relief. Some sort of normal life. I am sure they agree with me in saying, "You never have a normal life again with Gastroparesis." Amen.

We are all fortunate to have each other through the GP battle. Some have their poker groups. Some have their cheer groups. Others have their sports groups. We all have our 'Clean-out Group' here to support one another every glass of the way. CHEERS! my fellow drinkers to a better tomorrow and a less painful day!

 Off to join Littleblue on my couchbed as Oreo enjoys some birthday Milkbone treats. Glad one of us can splurge this evening! Hahahaha!

Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST

Updated: December 12, 2011 4:24 AM EST

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Mood:  lyrical

I had to give into the ole Drano today. The pressure pain from my intestines kept me up tossing and turning all night. By 2:00pm I had enough and vowed to finally do treatment. Luckily I have quite a few things to do around the house in order to keep me moving in between glasses of toxic poison.

Here's my Drano day in pictures:

1-At 3pm I got my glasses ready and set the kitchen stove timer. One full glass every fifteen minutes. Most stayed down but you can't win them all in the game of Drano aka Hell-In-A-Jug. At least the new refills don't taste so much like plastic unlike the last batch, UGGGG!

2-Finally my friend returned from 24 hours straight of working at the jail then drill for the Army. Guess what he brought me back? Popcorn for my very spoiled wildlife gang outside and the usual candy that is 'GP friendly.' How nice and thoughtful was that?! Since I was still consuming glass after glass of treatment I told him I would wake him up around 8pm. This allows him enough time to catch some sleep before having to get back up, take a shower and head to work at the jail then straight to the armory again. Wow! Must be nice to have so much energy! I am tired just thinking about all the hours he has to work this weekend. YIKES!

3-Within a few hours the treatment started working although one can never tell how bad its going to affect you. This time it was a sneak attack! Not only did it hit me but it seemed all at once. The only thing I did differently this time was not consume any fluids after midnight. Maybe that was the trick although I was in so much pain I wasn't thirsty. By 7:30pm I lost track how many times I was in the bathroom. A TV would be perfect in there! Maybe even a heated toilet seat, hahahaha! So much for a brilliant idea to run up to the post office in the middle of treatment. DUMB! My friend drove of course after he got up at 8pm because I thought I would be OK. Even OK enough to stop and get my local newspaper delivery boy a holiday gift. So we got the gift but I had to walk out of the store very slowly in order not to pass out and instead wait in the car. Let's just say it was a fast trip! What was I thinking? Sadly on Drano that's the problem...you don't think. All will be worth it to see the smile on the young man's face tomorrow.

4-After a exhausting day in between Drano and doing more than my fair share of house chores I am BEAT! Stick a fork in me and call me DONE! Unfortunately it was a must to do treatment so I don't end up in the hospital with an obstruction. Not so good being home this evening alone since family are all sick with the flu or other viruses. These are my fur nurses who will be keeping a close eye on Mom tonight into the early morning hours when my friend will be back to check on me in between jobs.

5-By 10pm I wasn't the only one struggling to stay awake. I think even the fur gang are tired and ready for bed. Good thing at least one of us will be able to sleep, hahahaha! Back to Drano land for this gal...

Posted by GastroparesisAwarenessCampaignOrg. at 11:52 PM EST

Updated: December 11, 2011 4:07 AM EST

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Mood:  d'oh

I have an off topic question...

Why don't they have hooks in restrooms for a cane? Seems some have places to put your purse, although they are few and far between but try balancing your purse and a cane, hahahaha! Sorry...just had to throw that off topic question out there for the world.

There hasn't been any fun Zumba or Country Dance Wii nights lately. Instead its been more like sleep nights while my body still tries to rebound from the last Hell-In-A-Jug treatment. Today was just horrible and I am dragging. T I R E D! I better pick one of the next few days because the longer I procrastinate drinking Drano the harder its going to hit me. Unfortunately my friend has Army drill this weekend on top of working full time at the jail babysitting the bad guys. I'm not comfortable anymore being home alone after treatment. I can handle vomiting and tossing back the toxic mix but its the aftermath with the unpredictable side effects that scares me. I think all GP'ers who have to endure weekly clean outs can agree! I thought I have seen it all but there is always a new side effect from enduring this nasty stuff that seizes to amaze me. Its smarter and much safer to have someone with you. Doing any treatment home alone is like playing Russian Roulette.

The sun is slowly trying to find its way back out but the ground is still a muddy mess. The poor fur kids really need their exercise but the only kind they get right now is being walked across the street. I was going to let them outside in the backyard but my friend went to check on the ground and said it was still too muddy. Thanks but no thanks, I will pass on cleaning up any huge messes today since I am already tired.

Honestly I didn't do too much today because I was still trying to wake up my tired body. At least I was able to touch up my gray hairs that Mr. Gastroparesis gives me (of what hair I still have left on my head) then finished up a few loads of wash, cleaned the bathroom and kitchen sink. My friend was also exhausted since he had to go straight from work at 7am to take his son to school then run to the post office and do a few other errands. By the time he got back to the house it was 10:30am. This evening as I was brushing PreciousKitty I looked over to see him passed out on the recliner. That makes two seeing once I was finished grooming Precious she too was out like a light! Hahahaha!

We were going to do a holiday activity this evening and go see some outdoor light displays but the closest we got to seeing lights was in the living room and on the trees, hahahaha! I gave up around 10pm and headed back to my couchbed. Its an early night for me and Littleblue. Hopefully we will find some energy tomorrow but for now its going to be a sleepy weekend...

Posted by GastroparesisAwarenessCampaignOrg. at 11:22 AM EST

Updated: December 10, 2011 1:54 AM EST

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Mood:  silly

HO! HO! HO! MERRY DRANO!!!!

Talking about a gift that keeps on giving, hahahahaha!

After a great night of sleep that went into the early afternoon at 3pm my pharmacy called to let me know they got the rest of the Drano in today. WHOAHOA! My friend wanted to head out anyways to find a New Years Eve outfit. Just 'in case' my GP wants to be on the nice list for the holidays he will have something to wear. If you wait until after Xmas to find an outfit then you might as well forget it! I remember being in my 20's and waiting until after Christmas to find a New Years dress and it was always slim pickings. Now I am much older and wiser. BUY NOW!

Once we got to the pharmacy I only needed to say my name then everyone working behind the counter stopped and looked up at me. Seems I am a very "rare breed." A "Drano Breed!" Of course me and my friend were chuckling and making light of the Drano situation because obviously seven jugs wouldn't be in the little plastic shelves where other prescriptions in alphabetical order were stored. Mine was on the floor. All three extra large bags worth! I love when the person who waits on me gets my order then everyone tends to also get very quiet. This leaves me open room to make all sorts of jokes. Today was no exception. Although I take my treatments very seriously because what I am drinking on a weekly basis is very toxic you still though in my opinion have to find some sort of humor. I believe it keeps one sain. AMEN.

I told my friend to smile on the way out and pose next to their GP car magnet that says, "Gastroparesis & Food Kills." Maybe instead I should design a magnet with a huge jug on it saying, "Drano & Gastroparesis Kills." Once we placed all the bags in the back of his car we barely had any room left. Like I mentioned before, surely they can find alternatives to a jug of chlorinated sodium water to flush your intestines out. Maybe in a chocolate bar with a kick?! At least it would finally rid any and all chocolate cravings I have, hahahaha! Could you imagine? Well anything is possible to me lately.

Luckily all the stores have plenty of menswear left for the holiday season. My friend got very lucky in finding some great deals on men's dress pants and tuxedo shirts with the tie and sash. Because of his height at least the pants he found ran a bit too long to start with so they fit perfectly. I have a good eye when it comes to fashion but do miss all the nice clothes I used to be able to wear. I think in general I just miss working. Gastroparesis life is not for the faint of heart. Its also not for those who have to give up the life they once knew for a ever changing lifestyle. Mine has yet to stop changing. Anymore I just go with the flow. I have finally learned after eight years there isn't anything nor anyone worth stressing over. Instead I now focus that energy on finding some sort of balance between sleep, treatments and continuing to enjoy the best life this gal can. I now lay my head down at night being content with any little accomplishments I have achieved for the day. I always enjoyed setting goals for myself. Now I am learning to set new goals even while being sick. Its tricky and challenging but it can be done.

This evening I decided to try a new recipe and make some gingerbread cookies. Thank goodness I was never much on cookies especially gingerbread or gingersnap. I don't need any temptations around the house right now being already a few days behind treatment. I am still passing last treatment at a snails pace. I am aiming for this weekend but taking it one day at a time. The cookies turned out really good but the best part is the house now smells AMAZING! Maybe I need to buy a gingerbread scented candle? I am starting to like gingerbread. Its not so bad after all. Well...I better put these gingerbread guys on a plate before they magically disappear...Not by the elves either...

Posted by GastroparesisAwarenessCampaignOrg. at 11:40 PM EST

Updated: December 9, 2011 4:41 AM EST

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Mood:  d'oh

Thank goodness for getting lots of sleep lately because I can't say the same for last night or this afternoon. I had some wicked nausea and intestinal pain. I did nothing but toss and turn all night. Sure, I need to really do treatment later this afternoon but with the burning and pressure pain it might not be such a good idea. When I am not feeling well on treatment day I tend to go with my instincts. My friend is really good at giving his opinion too!

So after taking a shower and trying to ease up the pressure pain we headed out. I called up Walgreen's ahead of time to check on my refill however they were only able to give me one jug of dynamite. I need to call ahead three days in advance because my prescription refills are for 8 jugs of Drano at a time. I know! Totally crazy! Also unheard of because no matter who is working behind the pharmacy counter like today they look at me as if to say, "HOLY COW LADY!"

NO! More like, "HOLY DRANO!" HAHAHAHA!

So...after only being able to get one jug filled today of toxic poison I decided that it just might be a good idea to hold off on treatment today. I will also need to pick up my other 7 jugs of dynamite tomorrow. Its always funny to watch reactions from others although me and my friend are only the ones laughing. Life is just too darn short to not find humor each and every day. Even if the laugh is on me, hahahaha! Maybe also on others as I bought a fake roll of toilet paper over the weekend. It actually looks like a real roll of toilet paper but it doesn't tear instead you can try to bend, pull and tug but it won't rip, hahahaha! OH IT WAS TOO FUNNY! I got a few people so far. Just call it my sick bathroom humor but heck! since I spend so much time in there why not? Hahahahaha!

After we left Walgreen's it was time to walk the mall. Maybe it might help ease up all this bloating and pain. "A" for effort anyways but at least we did make it through the entire mall. I even found a really unique dress for New Years Eve! I am determined as ever this year to go out, even if only for a few hours. I am so tired of my Idiopathic Gastroparesis controlling my life that this time that I am more determined than ever to ring in the New Year and not on my couchbed. AMEN!

Once we got back home I headed to the ole couchbed and plugged in my heating pad. Maybe tomorrow will be a better day seeing I really need to get on some sort of normal schedule with these treatments but if anything the ole jugs of dynamite aren't going anywhere. When I wake up tomorrow I am sure they will still be there waiting for me...

Posted by GastroparesisAwarenessCampaignOrg. at 11:59 AM EST

Updated: December 8, 2011 3:18 AM EST

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Mood:  happy

WHOAHOA! We are all back on dry land today!

This was of course after waking up at 3pm. Thank goodness Littleblue is our new alarm clock and howls when she needs to go outside because if not I could literally sleep all day. This body is beat but I still must remember to keep moving because gravity is the only thing I got left on my side. I assume if I wanted to just lay my cards down I could easily do so but I don't see that happening anytime soon.

Once my friend woke up they were one step ahead and made sure to check on the basement for any more leaks or standing water. So far so good! The weatherman was WAY OFF today with the forecast. So much for partly cloudy skies. Instead we added a third day of rain, rain and more rain. It might take us a month to dry out. Where the heck is the snow? My friend said, "I could just stay home all day." Me? I can only handle so much being stuck in my house-jail and I was determined to get out! I don't have the luxury to lay around and watch TV all day unless I want to end up right back at the hospital. NO THANKS!

We had a birthday this week at the house. It was Oreo's 13th birthday! To me he will always be my puppy. Oreo is such a affectionate fur kid and is also very generous especially when it comes to his birthday gifts. Seems it must be a Husky thing with Littleblue. What's his is hers and what's hers....Is hers! Hahahaha! Oreo got all sorts of new toys, treats and a sporty blue collar. What's a birthday when you can't share it with the rest of the gang? Even those who were a bit stingy...Like Littleblue, heeheeheehee!

Once I talked my friend into going out to run a few errands and get some groceries we headed out the door. My friend takes their dinner-breakfast to work seeing they are on third shift. They used to just buy something but he even admitted having home cooked meals to take is not only cheaper but he feels healthier. I love cooking and don't mind making meals. Its fun to create new recipes or even tinker a bit with existing ones.

We did stop by my friends house so they could pick up their mail. To most people they have no idea what he gives up in order to stay at my house and help me during weekly treatments. I tend to think he deserves all the Christmas gifts this year and should be placed on top of Santa's SUPER NICE LIST! He did change from second to third shift so it does limit spending time with his son however if only I was healthier we could all do more activities together. Its a very sad situation but we tend not to dwell on things that are beyond our control. I just hope one day I can repay all the favors he has done for me. He has given up a lot in order to be here and help out around the house. Its a very selfless thing he is doing and if only others in this world could follow in his footsteps. Hopefully he can be an example for all. I told him this evening how much I appreciated everything he has done for me and most of the time without even asking. It takes a very strong person to accept a terminal condition and be around someone who has many limitations in their life. We find things to do around my disability and although sometimes it can be a challenge we never fail to find laughter.

Well off to figure out this new compact video camera my friend bought as an early Xmas gift. This way he said, "Now your family will always have happy memories of you to hold close to their heart."

 Touching...

Posted by GastroparesisAwarenessCampaignOrg. at 11:47 PM EST

Updated: December 8, 2011 3:24 AM EST

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