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The Road Before & After Surgery
November 10, 2011
Time To KISS This Decade GOODBYE! :0)
Mood:  celebratory
Now Playing: Day 573-The Final Road To Survival

Today's the day! It's time to kiss this decade goodbye and welcome in a new one! WHOAHOA!

Now it sure wouldn't be a birthday without the ole GP monsters paying a visit now would it? So that would be at 1pm when I just thought maybe I got over a wave of nausea and vomiting. Nope, because that would leave me with a GP FREE birthday right? Right!

I got a fairly decent night of rest. I now have a daily routine down with my Zofran. Usually it makes me a bit tired but after taking it so often its starting to lose the side affect along with zapping most of the nausea. Last thing I need is to become immune to the only medication I can take so sadly I have to cut back a bit starting tomorrow and maybe just bring more Peppermint drops with me in my purse when I go out anywhere. My family is getting together at a local fondue restaurant this evening which happens to be one of my favorites so sorry Mr. GP if you don't settle down then I guess you are coming along for the birthday festivities.

This morning at 10:30am my friend said he woke up to the sound of the doorbell and what appeared to be a forest in a huge vase, heeheehee! No silly, instead it was a beautiful arrangement of flowers sent to me for my birthday then thirty minutes later another knock at the door brought a dozen of gourmet cookies-more like 'NONO' cookies but a few bites here and there won't hurt but this time I do need to be careful. Family and friends still try their hardest to remember what I can or can't have but its hard for them seeing most people can eat without ending up in the local ER but with this gal I have to really be careful. With all the nausea and vomiting I don't need any reminders since I now get them on a daily basis. I also got many nice cards and lots of birthday greetings sent via text, email and voice mail messages through out the day.

By 4:30pm me and my friend headed out to meet up with family. So I had to bring Mr. GP but no worries seeing no matter what each day brings you still have to get out there and live life. I refuse to waste more precious time that I already lost over the past eight years so if I want to do something or go somewhere I am going! Crawl there? OK. Wheelchair? Sure. Cane it all the way? Why not because I won't stop living and life doesn't stop evolving.

So today I celebrated the first day of many happy beginnings. There are nothing but positive changes ahead for this new decade of my life. It was indeed a very HAPPY BIRTHDAY! Thank you to family, friends and loved ones for all your thoughtful gifts, cards and messages. You truly made my day a memorable one! Thank YOU from the bottom of my heart XOXOXOXOX...


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: November 11, 2011 2:02 AM EST
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November 9, 2011
Day 3 Of New Changes-Out With The Old, In With The New!
Mood:  celebratory
Now Playing: Day 572-The Final Road To Survival

Its one more day before I make that final turn. That final exit out of my 30's and into my 40's. EEK!

So maybe I was never looking forward to being in my 40's only because I never though I would honestly live to see it. With my condition that has progressed over the past eight years and nine months I was told on more than a few occasions that I would be lucky to live with paralyzed organs past four years. Here I am already doubling those odds and defying the impossible.

I have no idea what to think or make of this new decade of my life. What I do know is I am fortunate by the grace of God and Angels that walk along side of me to see it. To live it.

Its time now to be out with the old and in with the new. My first start is with my feet! Hahahaha! OK. To be exact my boots! I have this one pair that I just refuse to let go of due to #1 they are comfortable and #2 I just was always too sick to take the time to find a new pair to replace them. Today was the day my friend vowed if need be take a Port O'Potty with us and head to the mall to find me some souls. NEW SOULS! Hahahaha! So my nausea hasn't eased up nor the waves of vomiting that accompany it but I do the best I can and still live life just a bit differently now. I did touch base with my Gastroenterologist this afternoon and his assistant. We went over the continued problem which they like to call, "Intestinal vomiting" seeing it isn't really the stomach that is causing it but things-well lately any thing minus watery fluids that touch my intestines which in turn comes right back up. Its very common unfortunately with my rare but serious complications due to Idiopathic Gastroparesis. Yes, its new for this gal and yes! it's very annoying but sadly it is something I am going to have to accept and learn to live with seeing as they said today, "It's not going to go away but we will help you learn to work around it the best we can."

So today is the last day in my 30's and it might be a good thing seeing it hasn't been a decade of kindness. The greatest struggles I had to overcome were in my 30's. The biggest disappointments and let downs were in my 30's but the most knowledge I have ever gained was also in my 30's. With knowledge comes wisdom and that is something money can't ever buy.

We did find me a new pair of boots today and I finally said goodbye to my old ones. Bye comfy boots! I sure will miss you although at this point they seemed as if they were talking back because the souls were open from way too many miles, hahahaha! My friend also chuckled and lets just say there isn't strong enough superglue to hold them together for another decade. Hahahaha!

Tomorrow is a day to celebrate. Celebrate life. I am fortunate and beyond blessed to be a living,  breathing, walking miracle. My doctors always tell me, "Kimberly, you have been through hell and back but your strength has allowed you to survive. You are a survivor and its your determination that makes us fight harder for you to continue living the best life we can give you." After over 8 years of fighting today I can look back and say, "It was worth it. Life is always worth it and YOU are worth fighting for!" Amen.

-Ecclesiastes 7:8

The end of a thing is better than its beginning; The patient in spirit is better than the proud in spirit.


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
Updated: November 10, 2011 2:38 AM EST
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November 8, 2011
Day 2 Of New Changes: Embracing Support :0)
Mood:  hug me
Now Playing: Day 571-The Final Road To Survival

Ever have someone do something for you and not think twice about it? Ever have someone do something for you that you might not consider as family but reach out to you just the same?

I did. I have.Today.

It was another morning with the sounds of happy hammers. Happy you may wonder? Yes! So this time I don't mind the sounds of being woken up at 11am. This was the first time I got to try out the new recliner chair in the backroom that my friend bought last month seeing this way I could go back to sleep. Guess what? I went right back to sleep and slept great on it! Even Oreo and Littleblue followed me into the room to catch some shut eye and slept next to me on the bed. They are great support and such wonderful fur nurses. I didn't want to wake my friend up who was sleeping next to my couchbed on the other recliner. He sleeps there when I am having a rough time in case I can't get up in the middle of the night to use the restroom. Luckily I remembered to place the cane next to the cart so when I did have to get up I could try making it on my own. God knows he sure needs some sleep so no need to wake him up.

By the time I finally got up it was 1pm. I let the fur kids outside and started with the normal house chores getting blankets put away, feeding the kitty gang, etc. Once I was able to finally look outside the wheelchair ramp was quickly coming along. It looks surreal seeing the ramp slowly come to life. Maybe its because for years I tried playing the 'Superwoman' role wearing my cape as if I wasn't aware of my limitations due to being sick. Maybe it also was because of people who surrounded me who acted like I wasn't sick or avoided me due to changes in my life from being sick. Now a new side of me is being embraced and now I fully accept me with all my limitations. This will never mean I am giving up or giving in because no matter how many hits or punches come my way I will always do my best to fight back and continue defying the odds.

I enjoy inspiring others who too walk on the same journey. If I can do it then YOU CAN DO IT! Here, I will show you how. Follow me and let me support you.

Its OK to need support. Its also OK to accept support. There were times through out my own GP journey that I sadly accepted not having support. Now after years of fighting solo I realized once my friend moved in helping me and supporting me that I need support. I need help. I can't do it alone anymore. It wasn't fair being alone. Its important to have support from others. It makes life a bit easier and two sets of hands are far better than one. I can't be 'Superwoman' anymore and this week I finally hung up my cape.

Later this evening once I got my Hell-In-A-Jug together, chaser glass of Hawaiian punch and a few pieces of hard candy I paused for a moment to look outside at those working hard to complete the wheelchair ramp. I was touched. I was touched that although they know about my medical condition they are not fully aware of all the limitations that it places in my life. What they do know is that they 'care.' They care about my well being. They care about making life a bit easier for me. They care about me and caring shows support. I have come to realize its OK embracing support from others and its OK for me to take it. I guess after years of giving support because it helps me with my own journey I never realized that at the end of the day you also need your own form of support. Your own support team.

Support need not to just come in the form of family. Support comes from those whom you least expect. Life will always change with my Idiopathic Gastroparesis and I accept those facts. What I have found out so far this week is its nice having support during your journey and the kindness when you least expect from others is amazing. I can't say, "THANK YOU" enough to Bob & Hugh who have been working hard the past few days on the wheelchair ramp. I am touched by your generosity and forever grateful for your help and support.

Thank you from the bottom of my heart.

*EMBRACE SUPPORT AND IT WILL EMBRACE YOU BACK.


Posted by GastroparesisAwarenessCampaignOrg. at 10:18 PM EST
Updated: November 8, 2011 11:24 PM EST
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November 7, 2011
Day 1 Of New Changes.
Mood:  celebratory
Now Playing: Day 570-The Final Road To Survival

It's the start of a new week and the first day of new changes in my life! First one I woke up to at 11:30am as the sounds of hammers brought new hope as the ground work begins on the new wheelchair ramp.

This comes just in time as my back continues to get a bit worse and the pain warrants me once again to utilize my cane. My ego still stands a bit in the way as I cringe by the looks I get out in public as I seek assistance to get around with less pain. "LESS PAIN" are the key words because I clearly deal with it enough when it comes to my Idiopathic Gastroparesis. Why suffer more than I need to?

The nausea and vomiting as well taking Zofran on a daily basis remain the same. Once again I tried a few car rides today with my friend so they could run errands but the motion of the car fires up my angry intestines over and over again. I can't stand nausea but worse I can't stand vomiting because it hits me much worse than someone who has normal GI organs. I am vomiting contents up from my intestines so need I say more? NOT! My Gastroenterologist has no need for me to see him just yet since things haven't gotten any worse but sadly on the same hand haven't gotten any better. At least I was able to keep down half of my last Drano treatment. Tomorrow I am hoping to keep all of it down so I can get some additional relief.

I tried a few small bites of solid food today. I guess I was feeling a bit bold but hours later once it drops out of my stomach it never seems to make it past my upper right side intestines then I get the pressure feeling, severe nausea and then I either suffer for awhile or vomit. Clearly as my surgeons said, "Your intestines are a paralyzed twisted mess. Your upper right colon is fused to your liver and the part of your small intestine that drops into your large intestine is extremely narrow. That is where we also had problems during your last surgery trying to unravel the huge mess."

Sadly they could never unravel the internal nightmare so overtime things have slowly progressed and here I am today. More problems and new symptoms.

I am hoping by doing my Hell-In-A-Jug treatment tomorrow I can rebound in time to celebrate my birthday Thursday as I enter a new decade of my crazy Gastroparesis life. God is good and I just hope this is the beginning of finally finding some happiness.

Its time to leave the past in the past and move forward to better days ahead! Amen!


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EST
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November 6, 2011
A New Week & A New Decade!
Mood:  celebratory
Now Playing: Day 569-The Final Road To Survival

Wow! Are they sure rushing the holiday season already or what?! I have never seen so many commercials and they all started a few days before Halloween. We have yet to even start a new month without tons of commercials. Seems Christmas has become nothing more than a quick consumer sale. One thing I sure don't regret or miss is working during the holiday season and traveling. I can remember taking hours to get home from working with one of my reps or a client when typically it would take half that time. What I do miss is being around people. I miss socializing.

GP SUKS! WAIT! It also SUKS THE LIFE OUT OF YOU TOO! Amen!

It was another night of forced sleep. Forced meaning if I don't take my pain and nausea medication I would be up all night with pressure then vomiting. Thanks but no thanks I will take my medication! Honestly me and my friend both agree this new symptom due to my Idiopathic Gastroparesis causing severe intestinal problems has now led me to waves of nausea with vomiting. Now I just try to deal with it and take my zip lock bags with me wherever I go. Sorry Mr. Yellow puke pan but you must now stay home.

My friend still has a few other things to sell at his house. Mostly furniture. Its been a very slow process but with utilizing Craigslist and Classified ads it has now started to become a huge success as he gets down to the last of the furniture. Today we went over to his house as I braved the car ride full of the typical nausea, etc. At least I was able to venture out of my house-jail a bit. It was nice to have a change of scenery seeing I am back down again with another Hell-In-A-Jug treatment Tuesday next week so just a few days away. It was nice to see all the furniture today go to good homes. Sometimes in life we are too consumed with material things and fail to forget there are others out there who would be tickled pink to have something that one just takes for granted. Some items we just gave away including a few TVs. A gentleman who came with his daughter and her family to buy the kid's bedroom set told a story about last year during the holiday season when him and his wife went to look for a new tree. They were going to buy a new one for their home then donate their old tree that they took with them on the way to the store. When they arrived at the store and started looking around for a new tree they came upon a young woman and her two children who were there as well looking for a Christmas tree however had a very tight budget. He told us about how they overheard her talking to one of the children about wanting a large tree to have for Santa to leave gifts under this year so he offered the young woman the tree in their car. He said, "The woman and her two children were so happy you would think they just won the lottery. It was so nice to see them all smile and they were very touched! It felt great to give back to others."

What a VERY NICE STORY!

This came from a gentleman who as well went through his own battle and survived because his front car plate clearly stated, "Purple Heart & Veteran." Just amazing when life touches you when least expected isn't it? It sure does remind us we are not invincible and life is just far too short to not reach out and touch someones life. Its nice to touch a heart in a kindred way.

On our way back to my house we dropped off some donated items to the local Goodwill store. My friend only has a few more pieces of furniture left to sell. It was nice to be surrounded by genuine good people today. I was always a people person but sadly when you are sick your days are limited being out in public as well I have to be careful being around germs.

Tomorrow the new wheelchair ramp will start to be built. They will be at the house around 11am so I better force my body to sleep a bit earlier this evening. Crossing my fingers for a good night of rest! This week will mark the start of a new decade in my life. There's plenty of things left on my 'Bucket List' to complete no matter how many GP Monsters have to dag along for the ride. Even if by wheelchair!


Posted by GastroparesisAwarenessCampaignOrg. at 10:51 PM EST
Updated: November 6, 2011 11:56 PM EST
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November 5, 2011
A New Puke Pan Idea!
Mood:  chillin'
Now Playing: Day 568-The Final Road To Survival

I got some much needed rest the past few days even minus the Drano aka Hell-In-A-Jug treatment. Honestly I think my poor body is just exhausted so once I lay down and start watching TV I am out within the next few hours. The nausea still comes in waves along with the vomiting but only to be expected and I have a hunch (more like gut-no pun intended) that its here to stay so I better start finding ways to work around this new problem with my darn paralyzed intestines.

I am taking the maximum dose of my Zofran but it only helps to a certain degree so I needed something else to add to my medicine. PEPPERMINT! Peppermint is a natural way to ease up nausea a bit and if this gal can find any form of peppermint lately I am trying it! My friend is already tired of seeing peppermint through out the house and even smelling it, hahahaha! He said, "I never did care for peppermint and now I really can't stand it." I told him the benefits it has on nausea and he was even a bit taken back so now it has him thinking about peppermint on a completely different level. During my surgeries when I had severe nausea they would put some peppermint oil on a large piece of gauze and hold it under my nose to help ease the nausea. It worked wonders!

A cheap way to get some additional relief! PEPPERMINT!

With me not feeling well my friend and the animal gang have been working overtime around the house. We got a new big comfy recliner for the back bedroom in case I want to feel as if I am taking a little escape but seems the only ones who are getting the escape are Precious and Bear kitty. One would think it was bought just for them! Hahaha! What a life! What a life!

My friend took a few naps today as well in between my waves of nausea and vomiting. I was going nuts being stuck in the house so we attempted a few car rides but once we hit the road waves of nausea from my intestines would hit. DANG IT! I do my best to just deal with it but I don't like vomiting in the car. Especially with the puke pan. Today I vowed to do something about it! If I am to deal with and work around this new symptom I better find a more comforting way to get sick while out on the road. Sure it sounds gross but when you are dealing with Gastroparesis one has to get creative. AMEN!

Later this evening we attempted to get some more toiletries at the local Target store which is right by my house. I also needed a few others things I was running low on as far as fluids. I was also determined to find something other than that darn yellow puke pan. It seems to go wherever I go lately so while we were at the store I made my way to the garbage bag isle looking to see what I could find. Right in front of me were these new extra large Hefty zip lock freezer bags. Hmmmmm...THIS COULD WORK! Not only did it work but they come in handy and fit in the car glove compartment or side of the seat. It sure beats taking a large puke pan around with me! Now its not so obvious that I am dealing with vomiting and being sick. Now I can hide it a bit. BONUS! Its also a "zip lock" bag so need I say more? We placed a few in my friends car as well my own this way I always have them around me. Now I don't have to carry a huge obvious puke pan around with me ever again.

Nothing worse than me gagging or my friend after puking into a yellow open pan. I also don't have to hear him say, "My new car is going to smell!" Hahahaha! OH the new car owners! RIGHT? RIGHT! Now it won't bother me or bother him.

THANK YOU HEFTY! TALKING ABOUT A DIFFERENT WAY TO ZIP IT AND THROW IT AWAY! HAHAHAHA! Oh the things one finds joy in while living a life with Gastroparesis. CHEERS!


Posted by GastroparesisAwarenessCampaignOrg. at 11:35 PM EDT
Updated: November 6, 2011 12:49 AM EDT
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November 4, 2011
Trying To Get Out Of The GP Rut...
Mood:  don't ask
Now Playing: Day 567-The Final Road To Survival

Nurse Blue has been great keeping a close eye on Mom. Now if only I can get her to hand me my puke pan. Hahahahaha! The fur kids sure do know when I am not feeling well as they keep close tabs on me and keep my feet warm too! So far they haven't left my side but only long enough to go outside and take a food break.

My friend got the chance to take a nice drive in his new car today. He's a proud owner of a new 2012 Cruize. I was never much for the color silver on a car and neither was he but actually I like the color on this car. It looks nice! He said it really drives smooth and is super excited! I'm very happy for him and he does so much to help me with things around the house and taking me to my doctor appointments that he sure does deserve something extra special!

I am still experiencing waves of pressure as the Drano tries to make its way through my intestines. The nausea also comes in strong waves. Zofran only provides me a temp fix and just when I think I will do ok with a few fudge pops or jello right back up later it comes. This too I know eventually will pass but if not I will do the best I can to work through this new Gastroparesis symptom. At least I am comforted to know once my weight dips under 105 pounds my doctor can place me on IV feedings to get my weight back up a bit. I am hoping we never have to use that type of treatment so I still force myself to consume fluids no matter how sick I feel. Luckily I don't have to endure another Hell-In-A-Jug treatment today. My doctor has me doing a second round instead next week-Tuesday this way my insides can catch a bit of a break.

I agree.

So its going to be a low-key weekend for this gal, my friend and the fur gang but we don't mind. There are plenty of 'Ghost Adventures' episodes to watch on TV and lots of Wii games to keep us busy. Maybe I need to have a Wii party?

HEY! THAT'S A GREAT IDEA!

Don't forget to bring fudge pops with you! Hahahahaha!


Posted by GastroparesisAwarenessCampaignOrg. at 11:08 PM EDT
Updated: November 4, 2011 11:36 PM EDT
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November 3, 2011
Vomiting, Drano, Vomiting, Drano...
Mood:  not sure
Now Playing: Day 566-The Final Road To Survival

Thank goodness for this blog seeing once I am able to get past this not so great time with my Gastroparesis I can at least look back and say, "If I got through that I can get through anything!" AMEN!

So I am still having vomiting and problems getting things to stay down my intestines. What I do need to start today is the ole Drano because the pressure and swelling is at its worse. My Gastroenterologist can't force me to do treatment today but him and his assistant as well the doctor on call this past weekend are all very concerned and feel I need to at least 'try.'

I agree.

My friend who now lives here with me and helps out came in from work around 8am. I only know this seeing he told me because I was so exhausted even the dogs waking up once he came home didn't wake me. In fact I was so exhausted I slept 11 hours. The past few days in between being sick I wanted to do something nice for my friend who has done so much for me by looking for a car for them. With having GM retirees in our family the obvious choice would be to look at a new 2012 Cruize. I have one myself...well my ex-roommate has one but I have drove it on several occasions. Its a very nice car and great on gas! I have a Hummer which is an amazing car but not good on gas however the car is lucky to get out of the garage once a week now with me being so sick, hahahahah! I knew what I was looking for, had the stock and vin number as well knew all the rebates and incentive's. No need to pull any fast ones over this gal because although I might be sick and on the decline I am not dumb. Far from dumb! So after two days on the phone and wheeling -n- dealin (no pun intended) this afternoon I was able to seal an awesome deal for a new 2012 Cruize for my friend. They gave him a really good trade in value for his current car a Jeep Cherokee and then added in some other rebates and referral discounts. He also changed insurance companies to the one I use-GMAC (Did I just do another plug?) and got an additional great deal saving him $45.00 a month.

It felt GREAT doing something nice for someone who does so many nice things for me! It always feels great to help others and it also helps me to see someone be so excited and smile. To me it's therapeutic.

Later this afternoon after my friend went up to sign papers on his new car I got my glasses, Hawaiian punch chaser, Worther's hard candy and the ole Hell-In-A-Jug together. IT'S TREATMENT TIME! Honestly I had no high expectations but at this point I will take any little relief I can get to avoid going back to the hospital. At least this jug didn't taste like plastic but it was a rather extra salty jug, UGGGG! So I set the stove timer and consumed my first glass then started finding things around the house to keep me busy. I did pretty good with the first few glasses then the third came right back up followed by the fourth, etc, etc, etc. Nothing quite like burning salt sensation through your nose. So I made it through half of a treatment that stayed down and the other came back up.

Looks like another Drano day "TAKE-TWO" tomorrow.

At this point I have to be prepared to face some unhappy news that this new symptom with my Idiopathic Gastroparesis might be permanent. So far its not looking too good but its better to face things head on then wait till its too late. There's nothing I can't overcome that I haven't already overcome. At least with the rain the wheelchair ramp was put on delay until next week-WHEW! With the way I have been feeling lately my body could use a week to try bouncing back a bit.

Here's to a night of no sleep and better days ahead...


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: November 4, 2011 1:00 AM EDT
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November 2, 2011
I Sure Hope This Isn't Permanent!
Mood:  not sure
Now Playing: Day 565-The Final Road To Survival

It was a rough night and rough morning. Once I finally was able to find a comfortable sleeping position the severe nausea would strike. This went on through out the night and then at 6am I woke up with horrible upper right pressure pain. Of course I didn't have my puke pan next to me or on my table next to my couchbed. DANGIT! I tired to text my roommate-ex but of course I might as well be texting the squirrels outside. At least they might had come in to rescue me and bring the puke pan to my side. So I tried to make it to the bathroom but sadly I didn't and instead had to utilize a Walgreen's plastic bag I had on the rolling cart next to me.

UGGGG!

At that point it didn't matter what it was because there was no way I could have made it to the bathroom in time. I was beat already from not sleeping most of the night and going into another day with vomiting and intestinal pressure that after wards I just passed out from exhaustion. This was until 12:30pm then the nausea came back to haunt me so I said, "FORGET IT ALREADY! I AM UP!" Honestly I do better standing and moving around a bit because once I lay or sit back down it hits me over and over again. I am trying to keep icepops down but of course they just seem to find their way right back up. Now I am in big trouble because my intestines in the process also need cleared. I am so swollen that I had to cut the waist on a pair of shorts I wear to lounge around the house.

THIS IS GETTING OLD!

My Gastroenterologist is scrambling to find me some sort or relief. I have taken the maximum dose of dissoluble Zofran that I can take on a daily basis but the quick fix doesn't seem to last. Once the medication wears off I am back up vomiting. My doctors are not sure if this might be a new symptom of my Gastroparesis I am experiencing, toxicity from things that need flushed out of my intestines, narrowed and fused upper right intestines or the combination of the above. What they do know is this is not normal for me. I have only vomited once over the past eight years with my Gastroparesis. That wasn't due to a flair up but from surgery.

KEY WORD: INTESTINES.

My doctors firmly believe this is going on from my paralyzed intestines and my gut also agrees. Most people when they vomit they are feeling it from their stomach. I feel a rush of pressure and then force from the upper right part of my intestines as contents push themselves back up. The acid has been horrific but as my doctor's assistant said, "With what has been coming back up its perfectly understandable."

I really need to do the ole Drano aka Hell-In-A-Jug treatment tomorrow and my Gastroenterologist agrees. I was strongly advised to do my best but to be cautious with how often I vomit during treatment and let them know how I am doing seeing this is going to be touch and go.

Isn't Gastroparesis life just wonderful? NOT! Ask any patient and they will agree it never ends and with GP its one thing after another. Amen.


Posted by GastroparesisAwarenessCampaignOrg. at 11:40 PM EDT
Updated: November 3, 2011 2:22 AM EDT
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November 1, 2011
WOW! It's Already November!
Mood:  loud
Now Playing: Day 565-The Final Road To Survival

It's the final day for the monster gang before they head back to 'Monsterland.' So today is MY DAY to have a little fun with them, heeheeheehee! This is the day I look forward to as I put each head onto a different body then top them all off with Santa hats and silver tinsel scarves. Now no monster Xmas holiday would be complete without some music right? Right! CHECK! GOT IT!

Wow! For once I am not the patient lying in the bed, hahahaha! Oh it was all in good fun and the looks from others who drove or stopped by was priceless! They were confused then laughing then confused then laughing. Most just HAD to take their cameras out to take a few photos. Some even posed with their children for the future holiday card this season.

Talking about a SCARY card! YIKES!

Winter is just around the corner and so is this gals birthday. Now that is the SCARIEST thing of all! Let's just say I am not looking forward to this birthday as I ring in a new decade of my life. Honestly I would like to celebrate it quietly. If I could travel I would be celebrating someone on the coast but instead this year we must be a bit creative so my friend has a few ideas in mind. I can't wait to leave this city if even for a day.

With a new year means new changes. Sadly my Idiopathic Gastroparesis isn't getting any better and my doctor made that very clear not including my other specialists who have worked years trying to stop the slow decline with my condition. Unfortunately they never won. Neither did I. Today I gave things a bit more thought on the lack of support and being a bit distant from others. This of course not by my choice. After putting more stress on myself by hearing from others on 'FAKEBOOK-Facebook' on what I was being excluded from over and over again as I continue being left out of events or just ever day life something just has to end and not just my Facebook account. My physicians have been putting in their two cents to try and wake me up these past few months and it finally has worked. Maybe it was the combination of everything but I hit my limit and emotional limit. There has been enough things that have been going on to make me feel already dead and gone as I continue to be excluded. Honestly as one physician said, "Life is far too short and when one becomes sick it is when others join forces together helping the patient." I am not quite sure on my end because the only force I have seen lately is on the movie, 'The Empire Strikes Back.' HAHAHAHA!

OK. That was FUNNY!

So I have come to realize things just aren't going to change and although with my unique medical situation there isn't any reason to void someone out of your life and not be able to move past differences. I have far worse things to be angry about like, "NOT EATING." However in the same breath once again you can't force people to change and you can't force people to make amends or to include you in their lives. Its not up to me and I am not God. Today I decided its time to accept that although I wish things would go back how they used to be they won't and the way things look now they never will again either. Its time for me to look forward and not look back. I can try to rhyme and reason till the sun goes down but everyone is entitled to feel the way they do and at the end of the road when that loved one is gone its up to others to be ok with themselves by walking away from the person who was ill. That's not up to me. That's up to them.

"There is always something you can do. There are hungry people to feed, naked people to clothe, sick people to comfort and make well. And while I don't expect you to save the world I do think it's not asking too much for you to take time and help those around you who are hungry, naked, lonely and sick. You may not be able to save the world but you will share your heart with those in need and in return the world will thank you."


Posted by GastroparesisAwarenessCampaignOrg. at 11:59 PM EDT
Updated: November 3, 2011 11:08 PM EDT
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