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The Road Before & After Surgery
October 18, 2017
Is It Worth The Risk?.
Mood:  quizzical
Now Playing: Day 2844-Next GP Chapter... Turning Lemons Into Lemonade :)

 

Well...it looks like Mittens kitty has a new best friend!

Mr. BigLOVE

These two are absolutely hilarious and quite adorable! Beary kitty is the laid back one who always enjoyed lounging the lazy days away with Cuddles. Beary sure misses Cuddles and it's hard seeing her looking through out the house for her friend. Thank goodness for BigLOVE to the rescue! He has been working double-time keeping up with both Beary and Mittens while playing among the two. So much for Eric washing the sheets and blankets. Heeheeheehee!

I am still doing my best, on my good days, getting the new website ready for this blog. Honestly, I have been sleeping more than anything right now. When my body needs rest...I rest. Over the past week...maybe a bit more rest than usual. Keeping mobile is still very important. I can't lay down or sleep for too long of periods at a time. Yet, it's still very hard to not do anything, but sleep. In between having to now take various medications in order to continue functioning through out the day. My body still has yet to adjust to the side effects. We were told, it will take time. As my energy still remains extremely low.

This morning, I received a few phone calls. One of those calls turned out to be quite a surprise! It seems that the new oncologist had a change of heart in taking on such a complex case. This is actually good news since one of her offices is only a mere 5 minute drive down the street from where we live. YAYYYY! It doesn't mean we won't have to sometimes make our way back across the state line to Ohio where my other team of specialists practice. But at least now I have someone within a very close proximity. Especially on days when the pain doesn't allow for a long drive in the car with bumps in the road making things a million times worse. This afternoon, I had my first session with a local pain management doctor. My very first spinal injection to hopefully at least take a bit of edge off the pain. If this doesn't work. Then it's back to the normal round of various narcotics to help me out which means more GI meds to take for motility. It's like a game of chess with no good move on the board. Damn if I do...damn if I don't.

With still starring down my temporary work permit from SSD. I sure hope to have at least a few good days through out the upcoming weeks. Our traveling tickets for the show taping are still on hold. Yet, I still also refuse to give up on two separate online ventures that just need for me to start feeling better so I can finish the web designing. A soft opening of the website of sorts still in the making. Rarely, do I give up so easily. But then again, I have yet to ever be in so much pain, non-stop, 24/7. With my intestine now literally flipped and the largest tumor causing more problems and sheer hell than ever before. I will far more appreciate the good days that may lie ahead of me. AMEN.

Late this afternoon, I received a phone call that we had been anticipating with regards to experimental treatment. My decision has firmly been made over the weekend. What I need is a bit more information to seal my decision. Finding out on the phone from the medical representative for the drug manufacturer, that the dosage that was given by my specialists, was one bit of information for sealing the deal on my decision. A dosage that is literally 4X of the norm that is given for patients receiving the same experimental treatment. A treatment that can only be used for 6 months. My specialists ordered for 12 months. If I ever questioned or denied just how bad things have gotten for me, internally. I will never, ever question again. Disappointing? You bet! The most damning bit of information I received on the phone to help seal my decision is knowing that only one injection could end it all. After the phone call, in which Eric overheard everything since we had the call on speakerphone so we both could partake, "Are they trying to literally just kill you with one injection?!?" Is it worth the risk?.

More of that...tomorrow.

In the meantime. It's about time to enjoy a bit more Halloween fun! A silver lining of sorts with some friendly Halloween faces!


Posted by GastroparesisAwarenessCampaignOrg. at 12:01 AM EDT
Updated: October 19, 2017 2:45 AM EDT
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