Living In A Drano World...
Mood:  hungry
Now Playing: Day 792-The Final Road To Survival

I'm just living in a Drano world as one of the unlucky victims...EEK!!

Yep. Its that time again. It's Hell-In-A-Jug day. This circle of liquid dynamite just never ends and I don't think it will ever end in this lifetime. I need to come up with some fun ways to make treatment days go by a bit easier. Maybe something to help bide the time and keep my mind off of whether or not it will work too quickly, not fast enough or come back up. If you think reading about Drano gets old then you need to drink this stuff on a weekly basis. Even the prescription refills have now become their own story with each trip becoming more interesting than the other. It isn't the Drano that makes it interesting but instead the continued reactions of others. I am so glad Eric had to go pick it up today seeing I was too busy chugging my own jug at home. Yes, another interesting audience at the store for him full of strange looks and even stranger questions. Maybe not strange to us because we are used to it. Not that drinking this foul stuff is bad enough but staring down another six jugs was the last thing I wanted to see today. UGG!!!!

With it being less than two weeks away from seeing my new surgical team I needed to finish up the rest of the paperwork. Its like signing your life away. Actually your intestines away. Hahahaha! Maybe my intestines need their own social security number because clearly they are starting to have their own identity. Everything lately has literally been evolving around my GI organs. NO LIE. Between the every other day feeling of not being able to breath due to the intestinal inflammation pushing on my lower lungs and daily energy that quickly gets zapped its been a one thing GI event after another. For those who have asked, "Is that a new hair style in your wedding photo?" and other questions I have honest answers for you but for those who are fellow GP friends you already knew the answers.

*No. I lost most of my hair over the past few years which got even worse after each weekly treatments. It has been a slow process thankfully after having too much hair to start with. Hee,hee,hee,hee...I have my own wig collection at home and although I would love to have my full head of hair back it is what it is. I have learned to accept it and there's no use crying over spilled milk.

*My nails have done the same game as my hair. Here today, gone tomorrow. Not being able to eat normally and staying on a mostly liquid diet is only part of the problem. When you have Gastroparesis your body can not break down nor absorb important vitamins and nutrients properly so your nails get brittle. I do occasionally get nails put on or do them myself for important events however with risk of infection that is caused by nail glue I only keep them on for a week-max.

*Yes. I still have to use a cane and wheelchair if walking for a long period of time. I will always have my good and bad days. In our wedding photo I was able to lean onto Eric to keep my balance and same with a few others taken out of town. After awhile you learn not to pay attention to the reactions of others because at the end of the day does peoples opinions who have no idea of my condition really matter? Same with using masks outdoors. At first it drove me nuts with people looking oddly at me but now I don't think twice about the reactions or children staring. Hey, maybe I should take a few extra masks along with me seeing the smog and humidity in this city surely can't be healthy for anyone outdoors.

I guess my point is, life is clearly what you make of it. Good or bad. While people might spend their time and money buying into vanity and what others believe they should look like I am too busy putting my time and money into saving vital organs in order to just survive. Kinda strange how being sick puts life into perspective isn't it? Wisdom isn't gained by age. Wisdom is gained by survival and learning life sustaining lessons along the way.