Now Playing: Day 738-The Final Road To Survival
I am rotating my sleep with the seasons but mostly the sun. Now we are thinking of getting better room darkening curtains for the large kitchen window so I don't wake up with Mr. Sunshine beaming into the dining room and living room. At least we avoided more rain so far this week although come summer it tends to be very dry.
My friend-Caregiver is getting their fair share this week of yard chores and projects. Its nice having a home and a large yard but oh the work that it involves! I remember when I lived in a condo and then a townhouse. Sure, I don't miss the feeling of no privacy but I do miss less work that has to be done and yard maintenance. Maybe we all need to have large houses when we are in our 20's when we have the energy to keep up with everything then downsize in our 30's and 40's. Sure makes perfect sense to me! Although my friend-Caregiver had a house of his own it didn't have near as large of a yard as my mine. Now since it is time to play catch up with the landscaping we are in need of new garden tools. Just when we think we have everything we need one more tool needs to be bought. Its been a game staying on top of everything before the truck load of mulch is delivered next month. YIKES! Boy is he in for a TREAT! Hahahahaha! I can't wait to see his face when the truck backs up and drops the mulch on the driveway. Its a good thing the yard just needs a few last minute things done before May is finally here because there is only a few weeks left of April.
I am ready to kiss this month good riddance and off to better days of May. Too much has been going on this month. Too much negativity and not enough positive makes for both of us in a hurry to put the past behind us. I won't be looking forward to the heat one bit but I have plenty of things going on over the next four months to keep me extremely busy! My friend-Caregivers Son will be starting kindergarten this summer so many changes ahead on the home front. Its important to instill values and life lessons early. Its important for children to learn early on that although life might present you physical challenges you can still overcome and adapt. Its all about working around disabilities and not letting them fully work against you. Sure, 1 out of every 2 people in the world have some type of disability so indeed there are many children in the world who are raised with someone who is sick but as adults its our important job to teach children about discrimination. Its going to be a learning process for all of us but his Son is very smart for his age and fully aware of right from wrong.
Since the ole treatments continue to present a bit of a challenge my wonderful Gastroenterologist is always on the look out for me regarding new drugs on the market. Last week they let me know of a new medication just released on the market to possibly "try." The only problem is instead of drinking the solution you inject it. YIKES! I have been looking into the new drug over the past week and have my concerns with the side effects and other unknown reactions. The other problem is once again its not really meant for my unique medical condition. They are only hoping it "might" help me a bit so I don't have to consume the toxic Drano on a weekly basis but instead maybe every other week, etc. Another problem is this medication has to be self injected or by someone else in the home every other day. DOUBLE YIKES!! I have had injections in my stomach years ago and trust me it hurt like HECK! I didn't like it then and I sure don't miss it now but once again I would be facing stomach injections every other day?!! Hmmmm....I have researched the new drug and even spoke to my main Pharmacist but even he has a few reservations and concerns. Most importantly is the cardiac side effects and possible reactions. Since the drug is rapidly absorbed and works in a matter of 30 minutes it can also cause sudden bowel obstructions and perforations. TRIPLE YIKES!!! Yes, it just gets scarier by the moment but I couldn't say no to my doctor and his staff who have become like a second family and work endlessly to find alternatives to the hellish Drano jug. Since my doctor had to submit a medical necessity letter for the insurance company and drug manufacturer the medication will not be ready until tomorrow. Will I give it a try? I'm honestly not sure yet. This evening I am leaning towards 70% no and 30% yes. So far I am the first of the GP guinea pigs in the same boat as me to step up to the plate. Remember, I only know of a handful of those who endure weekly treatments for paralyzed intestines and out of all of us I am the only one taking Trilyte while the others have to consume nasty mag-citrate. I feel the spotlight heat on me!
When it comes to my health I take things very seriously! Risks VS benefits is the name of the game. With this new proposition it has not only myself but other fellow GP friends of mine questioning if the risks are worth it?...Its always a gamble with GP and sometimes you win but most of the time you lose...