Now Playing: Day 597-The Final Road To Survival
3:10pm and I finally woke up! If this keeps up I might not be getting to sleep till 7am and then waking up just long enough for an hour of sunlight, hahahaha! Not that my seizures wouldn't mind seeing excessive light will always remain one very strong trigger. My friend said they don't mind because they don't get home until 7:30am.
I am on the soon to be down side of Drano. I call the next day, "DRANO HANGOVER DAY." Nothing like waking up with a wicked headache and spending half of your sleep time in the bathroom. They make chemo available through an IV so why in the world they can't make this nasty toxic chlorine the same way is beyond me. Could you imagine having to drink chemo treatments? If you can't then I can. My doctors insist the poison I have to consume is worse because as they said, "You are literally consuming it." I dare not know the extent of damage I am enduring each week that might last the rest of my lifetime. Not to compare chemo to Drano seeing you can't because they are totally different although in both cases the object is to rid the bad out of your body but sadly both take away the good with it. GEES!
The Bengals played the Steelers today. The Bengals literally got walked on, maybe RAN OVER instead. Once I turned the TV on in the living room I could hear my friend also turn on their television. I laughed as I saw the score. It got awfully quiet in the house. I should had placed a bet on this game seeing hands down I would had won! Its not unusual every time our home team gets cocky they end up blowing it. Not the first nor the last. Of course I had to sport my Steelers hoodie all day. We even ran up to the local store so I could grab a few things. Needless to say no one said a word. Even those wearing their Bengals gear. I guess they saw the game today too! I am usually not one for sports but I like to tease my friend and its fun! We both like to taunt each other,hahahaha!
Instead of enduring the effects of Drano today I should had been on an evening flight to NYC. I was invited to be on a segment with Anderson Cooper's show on CNN. So life happens and some things only happen once in a lifetime. Sadly at the wrong time! They contacted me Saturday regarding my unique story. It would had been an honor to discuss my diet and for once put Gastroparesis right smack on the map and in the public eye. HOWEVER I couldn't promise I could make a flight in such short notice. I couldn't find anyone either on short notice to fly out with me. It would had been great to meet Anderson Cooper seeing I am a huge fan and love his shows on CNN. It would had been also nice to fly again and with it being an evening flight less than two hours it would had been a perfect time to beat my fear and face the sound of music. I honestly starting thinking of ways to make it to the studio deadline of 12:30pm Monday however it would be just way too much on my poor body. Even I have to set boundaries. With life being so short I asked my friend if maybe I would regret my decision in not going. He said, "I promise there will be other opportunties and when its the right one it will all work out." I am still a bit bummed. Its not every day when you get rare opportunities like this one but I am still honored that I was considered and my unique life was taken seriously.Someday Gastroparesis will be on the RIDICULIST.
What patients endure on a daily basis is nothing but pure RIDICULOUS with the list of life changes that come along with the inability to not be able to eat. Amen! So Mr. Cooper maybe we will meet again some other day. I have faith and all good things happen in time. At a better time too!
So the rest of the day you can guess what I did and where I was at...Testing toilet paper, hahahahaha! Charmin is so old school isn't it? Hahahahaha!